From: Reliability and validity of the Thai pediatric quality of life inventory™ 3.0 neuromuscular module
Scale (# items) | Ambulatory | Non-ambulatory | P | Difference (95% CI) | ||
---|---|---|---|---|---|---|
Mean | SD | Mean | SD | |||
Child self-report | (n = 46) | (n = 45) | ||||
Total [25] | 74.9 | 13.9 | 60.7 | 15.2 | < 0.001 | 14.2 (8.1, 20.3) |
About my neuromuscular disease [17] | 73.7 | 15.1 | 56.3 | 19.8 | < 0.001 | 17.4 (10.1, 24.7) |
Communication [3] | 70.3 | 22.3 | 69.1 | 24.9 | 0.82 | 1.2 (−9.9, 12.4) |
About our family resources [5] | 78.1 | 16.0 | 71.3 | 14.2 | 0.06 | 6.8 (−0.2, 13.8) |
Parent proxy-report | (n = 54) | (n = 49) | ||||
Total [25] | 70.0 | 14.5 | 55.2 | 18.3 | < 0.001 | 14.8 (8.4, 21.3) |
About my child’s neuromuscular disease [17] | 69.8 | 14.8 | 53.8 | 20.1 | < 0.001 | 16.0 (9.2, 22.9) |
Communication [3] | 75.0 | 28.3 | 61.6 | 31.6 | 0.02 | 13.4 (1.7, 25.1) |
About Our Family Resources [5] | 67.9 | 21.0 | 56.0 | 23.5 | 0.01 | 11.9 (3.2, 20.6) |