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Table 3 Patients’ and physicians’ satisfaction with care

From: Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus

  CD (522) UC (363) P value1 Physician (55) P value2
IBD management is well coordinated    0.059   0.219
 very well coordinated 156 (29.9%) 115 (31.7%)   19 (34.5%)  
 fairly well coordinated 269 (51.5%) 198 (54.5%)   28 (50.9%)  
 fairly uncoordinated 90 (17.2%) 37 (10.2%)   8 (14.5%)  
  completely uncoordinated 7 (1.3%) 13 (3.6%)   0 (0%)  
Communication with health specialists    0.724   0.008
 Excellent 77 (14.8%) 71 (19.6%)   8 (14.5%)  
 Very good 218 (41.8%) 149 (41%)   38 (69.1%)  
 Good 172 (33%) 98 (27%)   8 (14.5%)  
 Fair 51 (9.8%) 44 (12.1%)   1 (1.8%)  
 Poor 4 (0.8%) 1 (0.3%)   0 (0%)  
Quality of the IBD care received in the past 12 months    0.898   0.231
 Excellent 90 (17.2%) 45 (12.4%)   12 (21.8%)  
 Very good 257 (49.2%) 231 (63.6%)   33 (60%)  
 Good 127 (24.3%) 62 (17.1%)   10 (18.2%)  
 Fair 23 (4.4%) 12 (3.3%)   0 (0%)  
 Poor 3 (0.6%) 2 (0.6%)   0 (0%)  
 Without any IBD care 22 (4.2%) 11 (3%)    
The following topics were sufficiently discussed in consultations?
 Current symptoms (Yes/ No/ No need to discuss/ unaware) 301/98/33/90 (57.7%/18.8%/6.3%/17.2%) 243/51/37/32 (66.9%/14%/10.2%/8.8%) 0.067 49/3/0/3 (89.1%/5.5%/0%/5.5%) 0.001
 Medical treatments (Yes/ No/ No need to discuss/ unaware) 341/70/31/80 (65.3%/13.4%/5.9%/15.3%) 93/112/36/22 (53.2%/30.9%/9.9%/6.1%) 0.001 47/3/1/4 (85.5%/5.5%/1.8%/7.3%) 0.001
 Surgery (Yes/ No/ No need to discuss/ unaware) 81/35/180/226 (15.5%/6.7%/34.5%/43.3%) 71/21/132/139 (19.6%/5.8%/36.4%/38.3%) 0.441 45/2/1/7 (81.8%/3.6%/1.8%/12.7%) 0.001
 New/experimental treatments (Yes/ No/ No need to discuss/ unaware) 202/16/103/201 (38.7%/3.1%/19.7%/38.5%) 78/71/89/125 (21.5%/19.6%/24.5%/34.4%) 0.001 50/2/1/2 (90.9%/3.6%/1.8%/3.6%) 0.001
 Nutrition/diet (Yes/ No/ No need to discuss/ unaware) 278/132/6/106 (53.3%/25.3%/1.1%/20.3%) 213/121/5/24 (58.7%/33.3%/1.4%/6.6%) 0.641 50/1/1/3 (90.9%/1.8%/1.8%/5.5%) 0.001
 Practical daily living (Yes/ No/ No need to discuss/ unaware) 321/145/27/29 (61.5%/27.8%/5.2%/5.6%) 203/112/14/34 (55.9%/30.9%/3.9%/9.4%) 0.218 41/9/2/3 (74.5%/16.4%/3.6%/5.5%) 0.001
 Education/studies (Yes/ No/ No need to discuss/ unaware) 265/167/69/21 (50.8%/32%/13.2%/4%) 162/108/38/55 (44.6%/29.8%/10.5%/15.2%) 0.485 41/7/3/4 (74.5%/12.7%/5.5%/7.3%) 0.001
 Employment (Yes/ No/ No need to discuss/ unaware) 221/146/76/79 (42.3%/28%/14.6%/15.1%) 139/112/56/56 (38.3%/30.9%/15.4%/15.4%) 0.069 47/5/1/2 (85.5%/9.1%/1.8%/3.6%) 0.001
 Personal relationships (Yes/ No/ No need to discuss/ unaware) 309/104/78/31 (59.2%/19.9%/14.9%/5.9%) 194/82/42/45 (53.4%/22.6%/11.6%/12.4%) 0.374 21/18/5/11 (38.2%/32.7%/9.1%/20%) 0.001
 Sexual relationships (Yes/ No/ No need to discuss/ unaware) 218/117/132/55 (41.8%/22.4%/25.3%/10.5%) 143/89/97/34 (39.4%/24.5%/26.7%/9.4%) 0.485 31/15/1/8 (56.4%/27.3%/1.8%/14.5%) 0.001
 General lifestyle issues (Yes/ No/ No need to discuss/ unaware) 279/129/61/53 (53.4%/24.7%/11.7%/10.2%) 202/71/39/51 (55.6%/19.6%/10.7%/14%) 0.788 29/19/4/3 (52.7%/34.5%/7.3%/5.5%) 0.429
 Main goals or priorities in caring for current condition (Yes/ No/ unaware) 377/102/43 (72.2%/19.5%/8.2%) 276/58/29 (76%/16%/8%) 0.572 49/6/0/0 (89.1%/10.9%/0%/0%) 0.047
 Make a plan for carrying out in daily life (Yes/ No/ unaware) 331/105/86 (63.4%/20.1%/16.5%) 218/83/62 (60.1%/22.9%/17.1%) 0.374 39/11/1/4 (70.9%/20%/1.8%/7.3%) 0.042
  1. 1: P value (CD vs. UC)
  2. 2: P value (patients vs. physicians)