Table 3 Patients’ and physicians’ satisfaction with care

IBD management is well coordinated

 very well coordinated

156 (29.9%)

115 (31.7%)

19 (34.5%)

 fairly well coordinated

269 (51.5%)

198 (54.5%)

28 (50.9%)

 fairly uncoordinated

90 (17.2%)

37 (10.2%)

8 (14.5%)

  completely uncoordinated

7 (1.3%)

13 (3.6%)

0 (0%)

Communication with health specialists

 Excellent

77 (14.8%)

71 (19.6%)

8 (14.5%)

 Very good

218 (41.8%)

149 (41%)

38 (69.1%)

 Good

172 (33%)

98 (27%)

8 (14.5%)

 Fair

51 (9.8%)

44 (12.1%)

1 (1.8%)

 Poor

4 (0.8%)

1 (0.3%)

0 (0%)

Quality of the IBD care received in the past 12 months

 Excellent

90 (17.2%)

45 (12.4%)

12 (21.8%)

 Very good

257 (49.2%)

231 (63.6%)

33 (60%)

 Good

127 (24.3%)

62 (17.1%)

10 (18.2%)

 Fair

23 (4.4%)

12 (3.3%)

0 (0%)

 Poor

3 (0.6%)

2 (0.6%)

0 (0%)

 Without any IBD care

22 (4.2%)

11 (3%)

 Current symptoms (Yes/ No/ No need to discuss/ unaware)

301/98/33/90 (57.7%/18.8%/6.3%/17.2%)

243/51/37/32 (66.9%/14%/10.2%/8.8%)

49/3/0/3 (89.1%/5.5%/0%/5.5%)

 Medical treatments (Yes/ No/ No need to discuss/ unaware)

341/70/31/80 (65.3%/13.4%/5.9%/15.3%)

93/112/36/22 (53.2%/30.9%/9.9%/6.1%)

47/3/1/4 (85.5%/5.5%/1.8%/7.3%)

 Surgery (Yes/ No/ No need to discuss/ unaware)

81/35/180/226 (15.5%/6.7%/34.5%/43.3%)

71/21/132/139 (19.6%/5.8%/36.4%/38.3%)

45/2/1/7 (81.8%/3.6%/1.8%/12.7%)

 New/experimental treatments (Yes/ No/ No need to discuss/ unaware)

202/16/103/201 (38.7%/3.1%/19.7%/38.5%)

78/71/89/125 (21.5%/19.6%/24.5%/34.4%)

50/2/1/2 (90.9%/3.6%/1.8%/3.6%)

 Nutrition/diet (Yes/ No/ No need to discuss/ unaware)

278/132/6/106 (53.3%/25.3%/1.1%/20.3%)

213/121/5/24 (58.7%/33.3%/1.4%/6.6%)

50/1/1/3 (90.9%/1.8%/1.8%/5.5%)

 Practical daily living (Yes/ No/ No need to discuss/ unaware)

321/145/27/29 (61.5%/27.8%/5.2%/5.6%)

203/112/14/34 (55.9%/30.9%/3.9%/9.4%)

41/9/2/3 (74.5%/16.4%/3.6%/5.5%)

 Education/studies (Yes/ No/ No need to discuss/ unaware)

265/167/69/21 (50.8%/32%/13.2%/4%)

162/108/38/55 (44.6%/29.8%/10.5%/15.2%)

41/7/3/4 (74.5%/12.7%/5.5%/7.3%)

 Employment (Yes/ No/ No need to discuss/ unaware)

221/146/76/79 (42.3%/28%/14.6%/15.1%)

139/112/56/56 (38.3%/30.9%/15.4%/15.4%)

47/5/1/2 (85.5%/9.1%/1.8%/3.6%)

 Personal relationships (Yes/ No/ No need to discuss/ unaware)

309/104/78/31 (59.2%/19.9%/14.9%/5.9%)

194/82/42/45 (53.4%/22.6%/11.6%/12.4%)

21/18/5/11 (38.2%/32.7%/9.1%/20%)

 Sexual relationships (Yes/ No/ No need to discuss/ unaware)

218/117/132/55 (41.8%/22.4%/25.3%/10.5%)

143/89/97/34 (39.4%/24.5%/26.7%/9.4%)

31/15/1/8 (56.4%/27.3%/1.8%/14.5%)

 General lifestyle issues (Yes/ No/ No need to discuss/ unaware)

279/129/61/53 (53.4%/24.7%/11.7%/10.2%)

202/71/39/51 (55.6%/19.6%/10.7%/14%)

29/19/4/3 (52.7%/34.5%/7.3%/5.5%)

 Main goals or priorities in caring for current condition (Yes/ No/ unaware)

377/102/43 (72.2%/19.5%/8.2%)

276/58/29 (76%/16%/8%)

49/6/0/0 (89.1%/10.9%/0%/0%)

 Make a plan for carrying out in daily life (Yes/ No/ unaware)

331/105/86 (63.4%/20.1%/16.5%)

218/83/62 (60.1%/22.9%/17.1%)

39/11/1/4 (70.9%/20%/1.8%/7.3%)