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Table 2 Patient-centered outcome measures

From: Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus

  CD (522) UC (363) P value
In the last two weeks,
 IBD has been well controlled (Yes/ No/ Not sure) 201/133/188 (38.5%/25.5%/36%) 158/120/85 (43.5%/33.1%/23.4%) 0.173
 Current treatment is useful in controlling IBD (Yes/ No/ Not sure/ without any treatment) 211/121/160/30 (40.4%/23.2%/30.7%/5.7%) 118/76/154/15 (32.5%/20.9%/42.4%/4.1%) 0.288
 Miss any planned activities because of IBD (Yes/ No/ Not sure) 203/244/75 (38.9%/46.7%/14.4%) 141/158/64 (38.8%/43.5%/17.6%) 0.999
 Wake up at night because of symptoms of IBD (Yes/ No/ Not sure) 191/233/98 (36.6%/44.6%/18.8%) 136/190/37 (37.5%/52.3%/10.2%) 0.997
 Suffer from significant pain or discomfort (Yes/ No/ Not sure) 223/245/54 (42.7%/46.9%/10.3%) 176/120/67 (48.5%/33.1%/18.5%) 0.375
 Feel lacking in energy fatigued for more than half the time (Yes/ No/ Not sure) 319/180/23 (61.1%/34.5%/4.4%) 212/117/34 (58.4%/32.2%/9.4%) 0.349
 Feel anxious or depressed because of IBD (Yes/ No/ Not sure) 322/142/58 (61.7%/27.2%/11.1%) 149/130/84 (41%/35.8%/23.1%) 0.029
 Need a change to treatment (Yes/ No/ Not sure) 144/173/205 (27.6%/33.1%/39.3%) 121/108/134 (33.3%/29.8%/36.9%) 0.083
In the last 12 months,
 Times of flare-ups 4.9 (11.9) 2.3 (3.7) 0.064
 Times of hospitalization because of IBD-related Symptoms 1.72 (1.8) 0.71 (1.6) 0.001
 absent from school or college due to IBD-related Symptoms (days) 65.6 (108.9) 28.5 (76.4) 0.002
 absent from work due to IBD-related symptoms (days) 71.1 (118.2) 31.7 (84.3) 0.001
 unable to do normal activities due to IBD-related Symptoms (days) 32.4 (70.5) 14 (50) 0.071
 In the last 24 months, the longest continuous stretch of time of taking steroid tablets for IBD (months) 2.1 (11.8) 0.5 (4.2) 0.001