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Table 2 Patient-centered outcome measures

From: Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus

 

CD (522)

UC (363)

P value

In the last two weeks,

 IBD has been well controlled (Yes/ No/ Not sure)

201/133/188 (38.5%/25.5%/36%)

158/120/85 (43.5%/33.1%/23.4%)

0.173

 Current treatment is useful in controlling IBD (Yes/ No/ Not sure/ without any treatment)

211/121/160/30 (40.4%/23.2%/30.7%/5.7%)

118/76/154/15 (32.5%/20.9%/42.4%/4.1%)

0.288

 Miss any planned activities because of IBD (Yes/ No/ Not sure)

203/244/75 (38.9%/46.7%/14.4%)

141/158/64 (38.8%/43.5%/17.6%)

0.999

 Wake up at night because of symptoms of IBD (Yes/ No/ Not sure)

191/233/98 (36.6%/44.6%/18.8%)

136/190/37 (37.5%/52.3%/10.2%)

0.997

 Suffer from significant pain or discomfort (Yes/ No/ Not sure)

223/245/54 (42.7%/46.9%/10.3%)

176/120/67 (48.5%/33.1%/18.5%)

0.375

 Feel lacking in energy fatigued for more than half the time (Yes/ No/ Not sure)

319/180/23 (61.1%/34.5%/4.4%)

212/117/34 (58.4%/32.2%/9.4%)

0.349

 Feel anxious or depressed because of IBD (Yes/ No/ Not sure)

322/142/58 (61.7%/27.2%/11.1%)

149/130/84 (41%/35.8%/23.1%)

0.029

 Need a change to treatment (Yes/ No/ Not sure)

144/173/205 (27.6%/33.1%/39.3%)

121/108/134 (33.3%/29.8%/36.9%)

0.083

In the last 12 months,

 Times of flare-ups

4.9 (11.9)

2.3 (3.7)

0.064

 Times of hospitalization because of IBD-related Symptoms

1.72 (1.8)

0.71 (1.6)

0.001

 absent from school or college due to IBD-related Symptoms (days)

65.6 (108.9)

28.5 (76.4)

0.002

 absent from work due to IBD-related symptoms (days)

71.1 (118.2)

31.7 (84.3)

0.001

 unable to do normal activities due to IBD-related Symptoms (days)

32.4 (70.5)

14 (50)

0.071

 In the last 24 months, the longest continuous stretch of time of taking steroid tablets for IBD (months)

2.1 (11.8)

0.5 (4.2)

0.001