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Table 1 Characteristics of patients responded to the survey

From: Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus

  CD UC Total P value (CD vs. UC)
Number of patients, N (%) 522 (58.6%) 363 (40.1%) 891  
Female sex, N (%) 201 (38.5%) 164 (45.2%) 362 (41%) 0.053
Age, years (range) 37 (18–69) 44 (18–75) 40 (18–75) 0.913
Disease duration since diagnosis, years (range) 4.1 (1–21) 4.5 (1–25) 4.2 (1–25) 0.214
Education level, N (%)
 Primary 37 (7.1%) 38 (10.5%) 75 (8.4%)  
 Secondary 120 (23%) 92 (25.3%) 214 (24%)  
 university 365 (69.9%) 233 (64.2%) 601 (67.5%) 0.238
Current occupation, N (%)
 Working (employee) 281 (53.8%) 218 (60.1%) 501 (56.2%) 0.136
 Working (self-employed) 55 (10.5%) 52 (14.3%) 109 (12.2%)  
 Studying 45 (8.6%) 15 (4.1%) 60 (6.7%)  
 Unemployed 36 (6.9%) 11 (3%) 47 (5.3%)  
 Long-term sick leave because of IBD 69 (13.2%) 17 (4.7%) 86 (9.7%)  
 Long-term sick leave for other reasons 1 (0.2%) 0 (0%) 1 (0.1%)  
 Retired early due to IBD 1 (0.2%) 4 (1.1%) 5 (0.6%)  
 Retired early for other reasons 13 (2.5%) 14 (3.9%) 27 (3%)  
 Retired (because of age) 11 (2.1%) 29 (8%) 42 (4.7%)  
 Fulfilling family role as parent or partner 10 (1.9%) 3 (0.8%) 13 (1.5%)  
Smoker, N (%)
 Every day or almost every day 39 (7.5%) 39 (10.7%) 80 (9%)  
 At least once per week 6 (1.1%) 14 (3.9%) 20 (2.2%)  
 At least once per month 2 (0.4%) 5 (1.4%) 7 (0.8%)  
 Never 475 (91%) 305 (84%) 784 (88%) 0.174
Abdominal surgery history for IBD, N (%) 99 (19%) 92 (25.3%) 191 (21.4%) 0.205