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Table 1 Characteristics of patients responded to the survey

From: Assessment of patient-centered outcomes (PROs) in inflammatory bowel disease (IBD): a multicenter survey preceding a cross-disciplinary (functional) consensus

 

CD

UC

Total

P value (CD vs. UC)

Number of patients, N (%)

522 (58.6%)

363 (40.1%)

891

 

Female sex, N (%)

201 (38.5%)

164 (45.2%)

362 (41%)

0.053

Age, years (range)

37 (18–69)

44 (18–75)

40 (18–75)

0.913

Disease duration since diagnosis, years (range)

4.1 (1–21)

4.5 (1–25)

4.2 (1–25)

0.214

Education level, N (%)

 Primary

37 (7.1%)

38 (10.5%)

75 (8.4%)

 

 Secondary

120 (23%)

92 (25.3%)

214 (24%)

 

 university

365 (69.9%)

233 (64.2%)

601 (67.5%)

0.238

Current occupation, N (%)

 Working (employee)

281 (53.8%)

218 (60.1%)

501 (56.2%)

0.136

 Working (self-employed)

55 (10.5%)

52 (14.3%)

109 (12.2%)

 

 Studying

45 (8.6%)

15 (4.1%)

60 (6.7%)

 

 Unemployed

36 (6.9%)

11 (3%)

47 (5.3%)

 

 Long-term sick leave because of IBD

69 (13.2%)

17 (4.7%)

86 (9.7%)

 

 Long-term sick leave for other reasons

1 (0.2%)

0 (0%)

1 (0.1%)

 

 Retired early due to IBD

1 (0.2%)

4 (1.1%)

5 (0.6%)

 

 Retired early for other reasons

13 (2.5%)

14 (3.9%)

27 (3%)

 

 Retired (because of age)

11 (2.1%)

29 (8%)

42 (4.7%)

 

 Fulfilling family role as parent or partner

10 (1.9%)

3 (0.8%)

13 (1.5%)

 

Smoker, N (%)

 Every day or almost every day

39 (7.5%)

39 (10.7%)

80 (9%)

 

 At least once per week

6 (1.1%)

14 (3.9%)

20 (2.2%)

 

 At least once per month

2 (0.4%)

5 (1.4%)

7 (0.8%)

 

 Never

475 (91%)

305 (84%)

784 (88%)

0.174

Abdominal surgery history for IBD, N (%)

99 (19%)

92 (25.3%)

191 (21.4%)

0.205