Skip to main content
Fig. 1 | Health and Quality of Life Outcomes

Fig. 1

From: The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?

Fig. 1

Health-related quality of life reported by the children (self-reported) and by proxy (parents) respectively, measured with the German version of the KIDSCREEN-27 and the DISABKIDS-37. a self-reported HRQOL, measured by the KIDSCREEN-27; all children (childt, n = 21), ventilated children (childv, n = 11), non-ventilated children (childnv, n = 10); b HRQOL of the children reported by their parents, measured by the KIDSCREEN-27: all children (proxyt, n = 18), ventilated children (proxyv, n = 6), non-ventilated children (proxynv, n = 12); c self-reported HRQOL, measured by the DISABKIDS-37; all children (childt, n = 21), ventilated children (childv, n = 11), non-ventilated children (childnv, n = 10); d HRQOL of children reported by their parents, measured by the DISABKIDS-37; all children (proxyt, n = 18), ventilated children (proxyv, n = 6), non-ventilated children (proxynv, n = 12). Abbreviations: KIDSCREEN-27: PHYWB, Physical Well-Being; PSYWB, Psychological Well-Being; AUTPA, Autonomy and Parents; PSOSU, Peers and Social Support; SCO, School Environment. DISABKIDS-37: IND, Independence; EMO, Emotion; SOIN, Social Inclusion; SOEX, Social Exclusion; LIMIT, Limitation, TREAT, Treatment; TOTAL total quality of life

Back to article page