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Table 1 Dimensions selected by KS experts (N = 19) as most important for QoL of patients with KS

From: Development and preliminary evaluation of the QUALIKO: an observational quality of life instrument for patients with Korsakoff’s syndrome

Dimension

Number of caregivers (%)a

Care relationship

18 (94.7%)

Feeling at home

16 (84.2%)

Meaningful activity

14 (73.7%)

Autonomy

13 (68.4%)

Positive self-image

13 (68.4%)

Positive affect

8 (42.1%)

Restless tense behavior

6 (31.6%)

Activities / hobbies

4 (21.1%)

Acceptance of KS and associated limitations

3 (15.8%)

Physical health

2 (10.5%)

Degree of limitations caused by KS

1 (5.3%)

Mobility

1 (5.3%)

Social relations / social support

1 (5.3%)

Work

1 (5.3%)

Symptoms of depression

0

Symptoms of anxiety

0

Sleep disturbances

0

Aggression / irritability

0

Material issues

0

Religiousness

0

  1. a Each KS expert was asked to select a maximum of 5 dimensions, but some caregivers selected more dimensions. KS Korsakoff syndrome