Skip to main content

Table 1 A conceptual framework for measuring well-being in dementia

From: Measuring the well-being of people with dementia: a conceptual scoping review

Conceptual Theme Domains
Emotional Well-Being Positive States (n = 7)a
Positive affect (e.g. pleasure, enjoyment, contentment); positive experience and associated emotion (e.g. humour) and ‘affect balance’
Psychological Well-Being Going Beyond (n = 7)a
Personal strengths (e.g. hope) showing aspects of personal growth, meaning-making or spirituality i.e. a sense of transcending the challenges of dementia.
Agency and Purpose (n = 13)a
‘Keeping Going’ and remaining’ Active’. Self-determination, autonomy, goals and achievement; ‘resilience’ (defined as remaining strong in the face of dementia or ‘resisting dementia’)’, through continued engagement with meaningful activity.
Positive Sense of Self (n = 13)a
Positive attitudes toward the self as well as perceived continuation of self-hood, including self-efficacy, self-esteem, sense of identity and dignity.
Social Well-Being Connection and Belonging (n = 6)a
Experiences of belonging (e.g. close relationships) love, support, appreciation, connection (e.g. meaningful social networks), ‘resilience’ (remaining strong / resisting dementia) through continued social participation, engagement in communities and citizenship.
Life Satisfaction Valuing Life (n = 2)a
Reflects a general sense of ‘feeling well’ and satisfaction with life as it is e.g. ‘Are you satisfied with your life?’ [53]
  1. a denotes number of studies at Step 2 in each domain