Table 2 Themes and Health Impact Statement Organisation
From: Development of the Thalassaemia Adult Life Index (ThALI)
Scale category | Facets incorporated within domains (themes emerged during the extraction process) | Definition of scale category |
|---|---|---|
General physical health (GPH) | - Overall QoL and general health | Self-evaluation of personal physical health status |
- Energy, fatigue/tiredness | ||
- Pain and discomfort | ||
- Sleep | ||
Autonomy (A) | - Mobility | Self-evaluation of feelings of dependency and control in usual physical role activities |
- Achievements/normality | ||
- Education and work | ||
- Activities of daily living | ||
Coping (C) | - Feelings/emotions | Self-evaluation of psychological upset and/or well-being in relation to purpose drive coping. |
- Thinking and | ||
Concentration | ||
- Planning ahead | ||
Body image, appearance and confidence (BIAC) | - Bodily image | Self-evaluation and feelings about physical self |
- Self-esteem and confidence | ||
Social relationships (SR) | - Relationships and support network | Self-evaluation of limitations in social activities from physical and emotional difficulties. |
- Leisure/social activities | ||
- Stigma |