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Table 2 Characteristics of study participants

From: A qualitative exploration of the content and face validity of preference-based measures within the context of dementia

 

Person with dementia (N = 9)

Carer (N = 17)

Gender, Female (%)

4 (44)

12 (71)

Mean age (min; max)

74.9 (62; 84)

68 (52; 87)

Type of dementia (%)

 Alzheimer’s Disease

8 (89)

11 (65)

 Younger Onset Dementia

1 (11)

–

 Vascular Dementia

–

1 (6)

 Lewy Body Disease

–

2 (12)

 Frontal Lobe Dementia

–

1 (6)

 Mixed (Alzheimer’s & Vascular)

–

2 (12)

Mean TICS score (min; max)

31 (22; 36)

–

Carer-reported severity level of dementia (%)

 Mild

–

3 (18)

 Moderate

–

8 (47)

 Severe

–

6 (35)

Years since diagnosis (%)

 Half to 1 year

2 (22)

0

 1–2 years

4 (44)

1 (6)

 2–3 years

2 (22)

1 (6)

 3–4 years

0

3 (18)

 More than 4 years

1 (11)

12 (71)

Living arrangement of person with dementia (%)

 Living alone

1 (11)

2 (12)

 Living with (a) family member(s)

7 (78)

8 (47)

 Living in a care institution

–

4 (24)

 Deceased

–

3 (18)

 Other

1 (11)

–

Relationship to person with dementia (%)

 Partner

–

10 (59)

 Daughter/Son

–

6 (35)

 Another family member

–

1 (6)

Frequency of providing informal care (%)

 Daily

–

14 (82)

 3–6 times per week

–

3 (18)