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Table 2 Characteristics of study participants

From: A qualitative exploration of the content and face validity of preference-based measures within the context of dementia

  Person with dementia (N = 9) Carer (N = 17)
Gender, Female (%) 4 (44) 12 (71)
Mean age (min; max) 74.9 (62; 84) 68 (52; 87)
Type of dementia (%)
 Alzheimer’s Disease 8 (89) 11 (65)
 Younger Onset Dementia 1 (11)
 Vascular Dementia 1 (6)
 Lewy Body Disease 2 (12)
 Frontal Lobe Dementia 1 (6)
 Mixed (Alzheimer’s & Vascular) 2 (12)
Mean TICS score (min; max) 31 (22; 36)
Carer-reported severity level of dementia (%)
 Mild 3 (18)
 Moderate 8 (47)
 Severe 6 (35)
Years since diagnosis (%)
 Half to 1 year 2 (22) 0
 1–2 years 4 (44) 1 (6)
 2–3 years 2 (22) 1 (6)
 3–4 years 0 3 (18)
 More than 4 years 1 (11) 12 (71)
Living arrangement of person with dementia (%)
 Living alone 1 (11) 2 (12)
 Living with (a) family member(s) 7 (78) 8 (47)
 Living in a care institution 4 (24)
 Deceased 3 (18)
 Other 1 (11)
Relationship to person with dementia (%)
 Partner 10 (59)
 Daughter/Son 6 (35)
 Another family member 1 (6)
Frequency of providing informal care (%)
 Daily 14 (82)
 3–6 times per week 3 (18)