Conceptual origin | Generic health-related QoL | Capability wellbeing and social care-related QoL | Dementia-specific QoL | |||
---|---|---|---|---|---|---|
Measure | EQ-5D-5 L [54] | AQoL-8D [15] | ICECAP-O [55] | ASCOT [20] | DEMQOL [44] (to derive the DEMQOL-U) a | QOL-AD [30] (to derived the AD-5D) b |
Items | 5 | 35 | 5 | 9 | 28 + overall QoL | 13 |
Dimensions c | 5 Mobility; Personal-care; Usual activities; Pain/discomfort; Anxiety/depression | 8 (4) Independent living; (3) Pain; (3) Senses; (8) Mental health; (4) Happiness; (3) Coping; (7) Relationships; (3) Self-worth | 5 Attachment; Security; Role; Enjoyment; Control | 8 Control over daily life; Cleanliness and comfort; Food & drink; Safety; Social participation; Occupation; Accommodation cleanliness and comfort; Dignity | 4 (5) Positive emotion; (8) Negative emotion; (6) Memory; (9) Daily activities | 13 Physical; Energy; Mood; Living; Memory; Family; Marriage; Friends; Self as a whole; Chores around the house; Fun things; Money; Life as a whole |
Content development | Domains based on expert opinion and literature review; labels identified in face-to-face interviews with convenience samples of lay respondents | Previous measure (AQoL-6D), review; focus groups with members of the public and mental health consumers and carers, psychometrics | In-depth interviews with older adults | Previous measure (OPUS), literature review | Review, expert opinion, qualitative interviews, psychometrics | Literature review, interviews with people with Alzheimer’s Disease and caregivers, older adults, and experts |