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Table 1 Participant demographics and clinical data

From: Modelling disease course in amyotrophic lateral Sclerosis: pseudo-longitudinal insights from cross-sectional health-related quality of life data

Continuous Variables

Mean

SD

Age

61.8

11.5

Disease duration in months

23

20

Disease severity

• D50

36.0

24.0

• ALSFRS-R total

34.8

8.6

• ALSFRS-R bulbar (1–3)

8.6

3.4

• ALSFRS-R cervical (4–6)

6.8

3.7

• ALSFRS-R lumbar (7–9)

6.5

3.7

• ALSFRS-R thoracic (10–12)

9.8

2.5

Health-related Quality of Life

• ALSAQ-40

  

• ALSAQ-40 Mobility

40.3

30.1

• ALSAQ-40 Activities of daily living

44.0

31.6

• ALSAQ-40 Eating

24.4

29.6

• ALSAQ-40 Communication

43.2

36.2

• ALSAQ-40 Emotional well-being

34.6

23.1

Categorical Variables

n

%

 Male

95

59

 Female

66

41

 Limb onset

104

64.6

 Bulbar onset

57

35.4

rD50-derived Disease Phase

 I

54

33.5

 II

89

55.3

 III/IV

18

11.2