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Family integration, cooperation and an optimistic definition of the situation (19 items)
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Security and stability (2)
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1. Communicating about personal feelings and concerns with my spouse
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Security and stability (2)
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3. Trusting my spouse (or former spouse) to help support me and my child
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6. Believing that my child will get better
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8. Showing that I am strong
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11. Taking good care of all medical equipment at home
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13. Getting other members of the family to help with chores and tasks at home
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Belief and trust (5)
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16. Believing that the medical center/hospital considers my family’s best interest
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Belief and trust (5)
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18. Believing in God
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Home care (2)
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21. Doing things together as a family (involving all members of the family)
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23. Believing that my child is getting the best medical care possible
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Home care (2)
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26. Doing things with family relatives
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28. Reminding myself that I have many things to be thankful for
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Spouse and child relationship (4)
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31. Encouraging my child with a medical condition to be more independent
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Spouse and child relationship (4)
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36. Building a closer relationship with my spouse
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Spouse and child relationship (4)
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38. Investing myself in my child
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Family involvement (3)
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41. Trying to maintain family stability
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Family involvement (3)
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43. Having my child with a medical condition seen at a clinic/hospital on a regular basis
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44. Believing that things will always work out
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45. Doing things with my children
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Maintaining social support, self-esteem and psychological stability (18 items)
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2. Engaging in relationships and friendships
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4. Sleeping
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7. Working in outside employment
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9. Purchasing gifts for myself and/or other family members
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12. Eating
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14. Getting away by myself
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Belief and trust (5)
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17. Building close relationships with people
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19. Developing myself as a person
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22. Investing time and energy in my job
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24. Entertaining friends at our home
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27. Becoming more self-reliant and independent
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29. Concentrating on hobbies (art, music, jogging, etc.)
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32. Keeping myself in shape and well groomed
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33. Engaging in social activities (parties, etc.) with friends
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34. Going out with my spouse on a regular basis
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37. Allowing myself to be angry
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Family involvement (3)
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39. Communicating with someone (not professional counselor/doctor) about how I feel
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42. Being able to get away from the home care tasks and responsibilities for some relief
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Understanding the health care situation through communication with other parents and consultation with the health care-team (8 items)
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Belief and trust (5)
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5. Communicating with the medical staff (nurses, social worker, etc.) when we visit the medical center
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10. Communicating with other individuals/parents in the same situation
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Belief and trust (5)
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15. Communicating with a doctor about my concerns about my child with a medical condition
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20. Communicating with other parents in the same type of situation and learning about their experiences
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25. Reading about how other persons in my situation addresses the situation
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30. Explaining family situation to friends and neighbors such that they can understand us
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Spouse and child relationship (4)
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35. Ensuring that the prescribed medical treatments for my child are carried out at home on a daily basis
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40. Reading more about the medical problem that concerns me
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