| | Family integration, cooperation and an optimistic definition of the situation (19 items) |
| Security and stability (2) | 1. Communicating about personal feelings and concerns with my spouse |
| Security and stability (2) | 3. Trusting my spouse (or former spouse) to help support me and my child |
| 6. Believing that my child will get better |
| 8. Showing that I am strong |
| 11. Taking good care of all medical equipment at home |
| 13. Getting other members of the family to help with chores and tasks at home |
| Belief and trust (5) | 16. Believing that the medical center/hospital considers my family’s best interest |
| Belief and trust (5) | 18. Believing in God |
| Home care (2) | 21. Doing things together as a family (involving all members of the family) |
| 23. Believing that my child is getting the best medical care possible |
| Home care (2) | 26. Doing things with family relatives |
| 28. Reminding myself that I have many things to be thankful for |
| Spouse and child relationship (4) | 31. Encouraging my child with a medical condition to be more independent |
| Spouse and child relationship (4) | 36. Building a closer relationship with my spouse |
| Spouse and child relationship (4) | 38. Investing myself in my child |
| Family involvement (3) | 41. Trying to maintain family stability |
| Family involvement (3) | 43. Having my child with a medical condition seen at a clinic/hospital on a regular basis |
| 44. Believing that things will always work out |
| 45. Doing things with my children |
| Maintaining social support, self-esteem and psychological stability (18 items) |
| 2. Engaging in relationships and friendships |
| 4. Sleeping |
| 7. Working in outside employment |
| 9. Purchasing gifts for myself and/or other family members |
| 12. Eating |
| 14. Getting away by myself |
| Belief and trust (5) | 17. Building close relationships with people |
| 19. Developing myself as a person |
| 22. Investing time and energy in my job |
| 24. Entertaining friends at our home |
| 27. Becoming more self-reliant and independent |
| 29. Concentrating on hobbies (art, music, jogging, etc.) |
| 32. Keeping myself in shape and well groomed |
| 33. Engaging in social activities (parties, etc.) with friends |
| 34. Going out with my spouse on a regular basis |
| 37. Allowing myself to be angry |
| Family involvement (3) | 39. Communicating with someone (not professional counselor/doctor) about how I feel |
| 42. Being able to get away from the home care tasks and responsibilities for some relief |
| Understanding the health care situation through communication with other parents and consultation with the health care-team (8 items) |
| Belief and trust (5) | 5. Communicating with the medical staff (nurses, social worker, etc.) when we visit the medical center |
| 10. Communicating with other individuals/parents in the same situation |
| Belief and trust (5) | 15. Communicating with a doctor about my concerns about my child with a medical condition |
| 20. Communicating with other parents in the same type of situation and learning about their experiences |
| 25. Reading about how other persons in my situation addresses the situation |
| 30. Explaining family situation to friends and neighbors such that they can understand us |
| Spouse and child relationship (4) | 35. Ensuring that the prescribed medical treatments for my child are carried out at home on a daily basis |
| 40. Reading more about the medical problem that concerns me |
