Table 1 The ITaLi-Q questionnaire
Domain | No. of items | Range | Description |
|---|---|---|---|
Side effects | 4 | 0–100 | A higher score indicates a higher frequency of HBIG-related side effects |
Side effects impact | 3 | 0–100 | A higher score indicates a higher impact of HBIG-related side effects on daily activities |
Negative feelings | 6 | 0–100 | A higher score is associated with more negative, therapy-associated feelings (e.g., anxiety and fatigue) |
Positive feelings | 5 | 0–100 | A higher score is associated with more positive, therapy-associated feelings (e.g., the perceived importance of one’s own health status) |
Flexibility | 8 | 0–100 | A higher score corresponds to a more disturbing impact of therapy on daily-life flexibility (e.g., planning work or leisure) |
Support | 3 | 0–100 | The higher the score, the greater is the level of support received to adhere to therapy (e.g., being reminded or being accompanied to outpatient follow-up visits) |
Need for support | 3 | 0–100 | The higher the score, the greater is the perceived need for support to adhere to therapy |
Satisfaction | 5 | 0–100 | A higher score indicates a higher degree of satisfaction related to HBIG therapy (e.g., overall satisfaction, satisfaction with the route of administration, and flexibility) |