Health-related quality of life in porphyria cutanea tarda: a cross-sectional registry based study

Table 1 Participant characteristics and biochemical markers

	N = 61
Age^a	60 (24–79)
Urinary uroporphyrin^b	452 (128–1528)
Male	28
Female	33
Familial PCT	26
Sporadic PCT	32
Smoking	21
No smoking	39
Low-to-moderate^c alcohol consumption	48
Moderate-to-high^d alcohol consumption	11
Treatment for PCT initiated	25
Treatment for PCT not initiated	36
Highest completed education
Primary school	14
High school	27
University and college < 4 years	15
University and college > 4 years	5
Employment
Paid work	33
Retirement	20
Disability pension	7
Other^e	9

^a Median with range, in years
^b Median with range, in nmol/mmol creatinine
^c 0–10 units per week
^d ≥ 11 units per week
^e Long-term sick leave, staying at home, in education or military service, unemployed, other

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