Skip to main content

Table 5 QoL scores for patients and their caregivers at follow-up, according to specific I-CHD

From: Quality of life in children with infrequent congenital heart defects: cohort study with one-year of follow-up

Diagnosis

General-specific section total score, median (IQR)

Cardiac-specific section total score, median (IQR)

Patient (n = 85)

Caregiver (n = 112)

Patient (n = 85)

Caregiver (n = 112)

EA

73.9 (58.7-84.8)

68.2 (53.5-81.8)

77.8 (71.3-89.8)

71.3 (58.9-82.7)

HTX

83.7 (83.7-83.7)

64.0 (53.7-68.4)

80.5 (80.5-80.5)

68.6 (61.4-69.8)

IAA

67.4 (61.9-70.6)

63.0 (50.0-71.4)

73.9 (70.3-79.8)

73.1 (59.3-78.4)

PVS

73.9 (57.0-87.5)

77.2 (64.1-86.9)

75.0 (62.0-88.6)

75.9 (60.2-85.2)

WS

83.1 (55.7-100)

62.4 (56.8-77.9)

86.4 (61.2-100)

63.4 (47.5-77.3)

  1. IQR Interquartile range, EA Ebstein’s Anomaly, HTX Heterotaxy Syndrome, IAA Interrupted Aortic Arch, PVS Pulmonary Valve Stenosis, WS Williams’ Syndrome