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Table 5 QoL scores for patients and their caregivers at follow-up, according to specific I-CHD

From: Quality of life in children with infrequent congenital heart defects: cohort study with one-year of follow-up

Diagnosis General-specific section total score, median (IQR) Cardiac-specific section total score, median (IQR)
Patient (n = 85) Caregiver (n = 112) Patient (n = 85) Caregiver (n = 112)
EA 73.9 (58.7-84.8) 68.2 (53.5-81.8) 77.8 (71.3-89.8) 71.3 (58.9-82.7)
HTX 83.7 (83.7-83.7) 64.0 (53.7-68.4) 80.5 (80.5-80.5) 68.6 (61.4-69.8)
IAA 67.4 (61.9-70.6) 63.0 (50.0-71.4) 73.9 (70.3-79.8) 73.1 (59.3-78.4)
PVS 73.9 (57.0-87.5) 77.2 (64.1-86.9) 75.0 (62.0-88.6) 75.9 (60.2-85.2)
WS 83.1 (55.7-100) 62.4 (56.8-77.9) 86.4 (61.2-100) 63.4 (47.5-77.3)
  1. IQR Interquartile range, EA Ebstein’s Anomaly, HTX Heterotaxy Syndrome, IAA Interrupted Aortic Arch, PVS Pulmonary Valve Stenosis, WS Williams’ Syndrome