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Table 2 Descriptive statistics of sample (n = 387)

From: Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3 L

 N (%) or (range), mean ± SD
Male159 (41.1%)
Aged ≥65 years166 (42.9%)
In paid employment102 (26.4%)
Number of activities of daily living (ADLs) the care-recipient is unable to complete c(0 to 8), 3.39 ± 2.67
Carer and care-recipient live together297 (76.7%)
Caregiving for ≥10 years203 (52.5%)
Hours of caring ≥50 h per week c167 (43.2%)
Quality of life measures c d
 ASCOT-Carer Index(0 to 1), .72 ± .23
 CES Index(10.8 to 100), 68.70 ± 17.78
 EQ-5D-3 L Index(−.12 to 1), .76 ± .25
Measures or items for construct validity analysis (hypothesis testing)
 Overall quality of life d(1 to 7), 4.60 ± 1.04
 Self-rated health (bad or very bad) a64 (16.5%)
 UCLA 3-item loneliness scale d(3 to 9), 4.60 ± 1.94
 Frequency of telephone contact with friends and family(1 to 5), 4.23 ± .90
 Frequency of face-to-face contact with friends and family(1 to 5), 3.61 ± .97
 Self-determination scale: choice subscale c d(1 to 5), 3.50 ± 1.17
 Relationship rewards scale c d(1 to 12), 9.19 ± 2.64
 Extremely, very or quite satisfied with social care services b c225 (58.1%)
  1. aBase category: Rated as fair, good or very good
  2. bBase category: Neither satisfied/dissatisfied, very or extremely dissatisfied with care
  3. cMissing data:
  4. Number of ADLs unable to complete alone or without help (n = 5)
  5. Hours of caring per week (n = 1)
  6. ASCOT-Carer (n = 3); CES (n = 8); EQ-5D-3 L (n = 3)
  7. Self-determination scale (n = 1)
  8. Relationship rewards scale (n = 3)
  9. Satisfaction with social care service (n = 9)
  10. dThe full range for each measure is:
  11. ASCOT-Carer Index, 0 (lowest) to 1 (highest) SCRQoL
  12. CES, 0 (lowest) to 100 (highest) QoL
  13. EQ-5D-3 L Index, − 0.594 (lowest) to 1 (highest) HRQoL
  14. Overall quality of life, 1 (so bad it could not be worse) to 7 (so good it cannot be better)
  15. UCLA 3-item loneliness scale, 3 (least) to 9 (most lonely)
  16. Self-determination scale: choice subscale, 1 (least) to 5 (most choice/autonomy)
  17. Relationship rewards scale, 0 (lowest) to 12 (highest relationship reward)