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Table 1 Description of ASCOT-Carer and Carer Experience Scale attributes

From: Measuring the outcomes of long-term care for unpaid carers: comparing the ASCOT-Carer, Carer Experience Scale and EQ-5D-3 L

ASCOT-Carer AttributeDescription
 OccupationBeing able to do the things you value and enjoy, whether it be paid or unpaid work, caring for others, or leisure activities
 Control over daily lifeBeing able to choose what to do and when to do it; having control over daily activities
 Self-careFeeling able to look after yourself as well as you want to: for example, eating well, getting enough sleep
 Personal safetyFeeling safe and secure, where concerns about safety may include fear of abuse, physical harm or accidents that arise as a result of caring
 Social participation and involvementBeing able to sustain the relationships with friends and family, and feeling involved or part of a community, as much as you want to
 Space and time to be yourselfHaving the space and time you want away from the caring role and the responsibility of caregiving
 Feeling encouraged and supportedFeeling encouraged and supported by professionals, care workers and others, in your role as a carer
Carer Experience Scale AttributeDescription
 Activities outside of caringBeing able to do a range of things you want outside of caring (e.g. socialising, physical activity and spending time on hobbies, leisure or study)
 Support from family and friendsAmount of personal help in caring and/or emotional support from family, friends, neighbours or work colleagues
 Assistance from organisations and governmentAmount of help from public, private or voluntary groups in terms of benefits, respite and practical information
 Fulfilment from caringFrequency of experiencing positive feelings from providing care, which may come from: making the person you care for happy, maintaining their dignity, being appreciated, fulfilling your responsibility, gaining new skills or contributing to the care of the person you look after
Control over caringBeing able to influence the overall care of the person you look after
Getting on with the person you care forFrequency of being able to talk with the person you look after and discuss things without arguing