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Table 4 Cognitive Debriefing

From: Development and content validity of the Lupus Foundation of America rapid evaluation of activity in lupus (LFA-REAL™): a patient-reported outcome measure for lupus disease activity

Area probed N (%) Understood Comments
Instructions
 Section 1 “the past month” 14/15 (93)  
 Section 2 “current lupus symptoms” 9/15 (60) Some difficulty with “other health problems”
 Section 3 “if you filled this form before” 15/15 (100)  
Examples 11/15 (73) “Examples were helpful”
Recall Period −1 month 13/15 (87) Thought it was too long (n = 2)
Response options
 Scale 14/15 (93) Easy to use
 Word anchors and numbers 15/15 (100) No difficulty
 Meaning of the word anchors 5/5 (100) Understood the meaning
Symptoms
 Rash 15/15 (100) Understood the meaning
 Arthritis-joint pain 14/14 (100)  
 Arthritis - joint stiffness 15/15 (100)  
 Arthritis-joint swelling 15/15 (100)  
 Arthritis-overall 14/15 (93) Understood the meaning
 Muscle pain oraches 14/15 (93)  
Body Symptoms Difficulty The wording was changed
 Chest pain 13/15 (87)  
 Shortness of breath 13/15 (87)  
 Swelling in legs 12/15 (80)  
Other No issues “Not sure how to factor in all symptoms”
 Fatigue 15/15 (100)  
 Fever 15/15 (100)  
 Hair loss 15/15 (100)  
Use of the scale
 Verbalized understanding of the use of the scale
15/15 (100) Correctly used the scale (n = 9), circled number instead of a line to mark response (n = 4), incorrect use of response option (n = 2)