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Table 4 Cognitive Debriefing

From: Development and content validity of the Lupus Foundation of America rapid evaluation of activity in lupus (LFA-REAL™): a patient-reported outcome measure for lupus disease activity

Area probed

N (%) Understood

Comments

Instructions

 Section 1 “the past month”

14/15 (93)

 

 Section 2 “current lupus symptoms”

9/15 (60)

Some difficulty with “other health problems”

 Section 3 “if you filled this form before”

15/15 (100)

 

Examples

11/15 (73)

“Examples were helpful”

Recall Period −1 month

13/15 (87)

Thought it was too long (n = 2)

Response options

 Scale

14/15 (93)

Easy to use

 Word anchors and numbers

15/15 (100)

No difficulty

 Meaning of the word anchors

5/5 (100)

Understood the meaning

Symptoms

 Rash

15/15 (100)

Understood the meaning

 Arthritis-joint pain

14/14 (100)

 

 Arthritis - joint stiffness

15/15 (100)

 

 Arthritis-joint swelling

15/15 (100)

 

 Arthritis-overall

14/15 (93)

Understood the meaning

 Muscle pain oraches

14/15 (93)

 

Body Symptoms

Difficulty

The wording was changed

 Chest pain

13/15 (87)

 

 Shortness of breath

13/15 (87)

 

 Swelling in legs

12/15 (80)

 

Other

No issues

“Not sure how to factor in all symptoms”

 Fatigue

15/15 (100)

 

 Fever

15/15 (100)

 

 Hair loss

15/15 (100)

 

Use of the scale

 Verbalized understanding of the use of the scale

15/15 (100)

Correctly used the scale (n = 9), circled number instead of a line to mark response (n = 4), incorrect use of response option (n = 2)