Area probed | N (%) Understood | Comments |
---|---|---|
Instructions | ||
Section 1 “the past month” | 14/15 (93) | |
Section 2 “current lupus symptoms” | 9/15 (60) | Some difficulty with “other health problems” |
Section 3 “if you filled this form before” | 15/15 (100) | |
Examples | 11/15 (73) | “Examples were helpful” |
Recall Period −1 month | 13/15 (87) | Thought it was too long (n = 2) |
Response options | ||
Scale | 14/15 (93) | Easy to use |
Word anchors and numbers | 15/15 (100) | No difficulty |
Meaning of the word anchors | 5/5 (100) | Understood the meaning |
Symptoms | ||
Rash | 15/15 (100) | Understood the meaning |
Arthritis-joint pain | 14/14 (100) | |
Arthritis - joint stiffness | 15/15 (100) | |
Arthritis-joint swelling | 15/15 (100) | |
Arthritis-overall | 14/15 (93) | Understood the meaning |
Muscle pain oraches | 14/15 (93) | |
Body Symptoms | Difficulty | The wording was changed |
Chest pain | 13/15 (87) | |
Shortness of breath | 13/15 (87) | |
Swelling in legs | 12/15 (80) | |
Other | No issues | “Not sure how to factor in all symptoms” |
Fatigue | 15/15 (100) | |
Fever | 15/15 (100) | |
Hair loss | 15/15 (100) | |
Use of the scale Verbalized understanding of the use of the scale | 15/15 (100) | Correctly used the scale (n = 9), circled number instead of a line to mark response (n = 4), incorrect use of response option (n = 2) |