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Table 1 Participant Socio-demographic Characteristics

From: Development and content validity of the Lupus Foundation of America rapid evaluation of activity in lupus (LFA-REAL™): a patient-reported outcome measure for lupus disease activity

Participant Characteristics

Total

N = 25

Phase 1

N = 10

Phase II

N = 15

Age (years)

 Mean (SD)

45.7(13.5)

42.6 (13.8)

47.7(13.5)

Gender, n (%)

 Female

22 (88.0%)

8 (80.0%)

14 (93.3%)

Ethnicity, n (%)

 Hispanic

5 (20.0%)

3 (30.0%)

2 (13.3%)

Race, n (%)1

 American Indian or Alaska Native

3 (12.0%)

1 (10.0%)

2 (13.3%)

 Asian

1 (4.0%)

1 (6.7%)

 Black or African American

7 (28.0%)

3 (30.0%)

4 (26.7%)

 Native Hawaiian or other Pacific Islander

2 (8.0%)

2 (13.3%)

 White

11 (44.0%)

6 (60.0%)

5 (33.3%)

 Other2

5 (20.0%)

1 (10.0%)

4 (26.7%)

Marital status, n (%)

 Single

7 (28.0%)

2 (20.0%)

5 (33.3%)

 Married

11 (44.0%)

6 (60.0%)

5 (33.3%)

 Divorced

4 (16.0%)

4 (26.7%)

 Separated

1 (4.0%)

1 (10.0%)

 Widowed

1 (4.0%)

1 (6.7%)

 Other3

1 (4.0%)

1 (10.0%)

Current living/domestic situation, n (%)

 Living alone

4 (16.0%)

1 (10.0%)

3 (20.0%)

 Living with a spouse, partner, family, or friends

20 (80.0%)

9 (90.0%)

11 (73.3%)

 Other4

1 (4.0%)

1 (6.7%)

Employment status, n (%)1

 Employed, full-time

6 (24.0%)

3 (30.0%)

3 (20.0%)

 Employed, part-time

5 (20.0%)

2 (20.0%)

3 (20.0%)

 Homemaker

2 (8.0%)

1 (10.0%)

1 (6.7%)

 Student

1 (4.0%)

1 (6.7%)

 Unemployed

2 (8.0%)

2 (13.3%)

 Retired

2 (8.0%)

2 (13.3%)

Disabled

12 (48.0%)

6 (60.0%)

6 (40.0%)

Highest level of education, n (%)

 Secondary/high school

2 (8.0%)

1 (10.0%)

1 (6.7%)

 Technical or vocational degree

2 (8.0%)

2 (13.3%)

 Some college/university

7 (28.0%)

5 (50.0%)

2 (13.3%)

 College/university degree (BA, BS)

7 (28.0%)

3 (30.0%)

4 (26.7%)

 Postgraduate degree (MA, PhD)

6 (24.0%)

1 (10.0%)

5 (33.3%)

 Other5

1 (4.0%)

1 (6.7%)

General health status within the past week, n (%)

 Excellent

 Very Good

1 (4.0%)

1 (10.0%)

 Good

12 (48.0%)

5 (50.0%)

7 (46.7%)

 Fair

10 (40.0%)

4 (40.0%)

6 (40.0%)

 Poor

2 (8.0%)

2 (13.3%)