Subscales & Items | Child | Parent | ||||||
---|---|---|---|---|---|---|---|---|
A | T | W | C | A | T | W | C | |
Daily Activities | ||||||||
Trouble eating with a fork and knife | 0.76a | 0.39 | 0.44 | 0.00 | 0.77a | 0.47 | 0.34 | 0.27 |
Hard to write or draw with a pen or pencil | 0.74a | 0.51 | 0.40 | 0.21 | 0.80a | 0.70 | 0.44 | 0.58 |
Hard to put on my clothes | 0.84a | 0.17 | 0.02 | 0.02 | 0.90a | 0.52 | 0.34 | 0.25 |
Hard to use the toilet without help | 0.74a | 0.20 | 0.10 | 0.04 | 0.81a | 0.51 | 0.21 | 0.36 |
Need more time than others to complete tasks | 0.64a | 0.30 | 0.19 | 0.01 | 0.75a | 0.50 | 0.38 | 0.24 |
Treatment | ||||||||
Hard to take medicines | 0.24 | 0.60a | 0.45 | 0.30 | 0.31 | 0.60a | 0.49 | 0.37 |
Physical therapy or daily stretching hurts | 0.48 | 0.81a | 0.41 | 0.45 | 0.62 | 0.85a | 0.38 | 0.48 |
Hard to be responsible for my medicines or physical therapy | 0.27 | 0.88a | 0.44 | 0.41 | 0.57 | 0.86a | 0.49 | 0.43 |
Hard to manage my muscle problem | 0.29 | 0.83a | 0.61 | 0.34 | 0.61 | 0.88a | 0.60 | 0.45 |
Worry | ||||||||
Worry about my muscle problem | 0.24 | 0.58 | 0.78a | 0.02 | 0.59 | 0.74 | 0.76a | 0.39 |
Worry whether or not my medicines are working | 0.15 | 0.52 | 0.81a | 0.10 | 0.23 | 0.38 | 0.76a | 0.33 |
Worry about my family | 0.49 | 0.48 | 0.83a | 0.18 | 0.37 | 0.44 | 0.73a | 0.28 |
Worry about needing help from others | 0.30 | 0.39 | 0.80a | 0.19 | 0.38 | 0.40 | 0.84a | 0.40 |
Worry about not being accepted by others | 0.19 | 0.32 | 0.73a | 0.42 | 0.22 | 0.45 | 0.71a | 0.45 |
Worry about being treated differently from others my age | 0.05 | 0.47 | 0.68a | 0.37 | 0.06 | 0.29 | 0.68a | 0.34 |
Communication | ||||||||
Hard for me to tell the doctors and nurses how I feel | 0.00 | 0.37 | 0.21 | 0.87a | 0.36 | 0.47 | 0.42 | 0.97a |
Hard for me to ask the doctors and nurses questions | 0.05 | 0.40 | 0.20 | 0.91a | 0.46 | 0.58 | 0.52 | 0.96a |
Hard for me to explain my muscle problem to other people | 0.16 | 0.48 | 0.29 | 0.84a | 0.40 | 0.47 | 0.44 | 0.93a |