Table 6 Themes arising from placement of the Additional discs

Relative to the collective

“Work, helping others, looking after the family, the house, this is important. I volunteer, I do this because I want to do something to keep my mind and body active” (Assyrian SWS 8.1)

“I know that being with others helps me [pause] it keeps me going [pause] and I learn and share with others” (Vietnamese, SRS 3.5)

“I feel the support of my community. We share, we help each other. My troubles seem less when I am with people” (Assyrian, SRS 4.9)

“I don’t like to go out. I don’t want to see people [pause]. I think things have affected me so, I don’t feel comfortable with this in my life” (Arabic, SRS 27.0)

“My husband, he is next to me. We support each other [pause]. If there is caring between husband and wife, that is what matters” (Assyrian, SSpS 4.5 cm)

“This is hard because my children and I are not close [pause]. They don’t listen to me anymore [pause]. I think maybe because of the pain. I am now weak/ [seen as weak by them]”. (Vietnamese, SFS 15.1)

“You know the pain it changes you. It changes how you feel with others and how I can talk and do things with my family. It is not the same. They do not want to be around that” (Arabic, SFS 20.4)

“I am Assyrian [pause]. We Assyrians, you know, spirituality, religion, God [pause], it is like the breath we breathe [pause], it is within us” (Assyrian, SSS 2.4)

“This is me [pause], it is part of me [pause]. I am Mandaean and for us, this is more than just pray, it is who we are” (Arabic, SSS 0.1)

Meaning & sense of worth

“Should be my life [pause] to keep the house and cook the meal and be proud of this, but no matter how I try the pain it pierces me, and I collapse [pause] I am trying” (Vietnamese, SWS 18.5)

“It is part of my life, who I am and was raised to be. Even when I cannot, the will is strong” (Assyrian, SWS 2.5)

“In our community we are close [pause], we help each other, try to do this [pause], to be with people. Think it helps” (Assyrian, SRS 10.7)

“They are your heart [pause]. My children make me strong [pause], are special to me” (Vietnamese, SFS 0.7)

“My family are my purpose, my life.” (Assyrian, SFS 6.4)

“My children are my life. My breath and the reason I am here today. They are why I want to change my life” (Arabic, SFS 3.1)

“I think this helps keep me centred. It guides how you can view life and what happens” (Arabic, SSS 5.9)

“I am Buddhist [pause], this is so calm for me. It helps me to focus about what is important [pause] find meaning in life and this I find for me” (Vietnamese, SSS 1.3)

“I try to believe. I want to give myself to this, but I am lost. I find this too hard on me now” (Arabic, SSS 13)

“I don’t believe [pause]. The things that have happened to me [pause]. I can’t anymore” (Arabic, SSS 25.2)

Role expectations

“work is important to me [pause] I should be able to provide for my family [pause]. This is who I am [pause], but the pain [pause], it limits me” (Assyrian, SWS 5.4)

“My work is to my family and my husband [pause]. I care for them [pause]. This is who I am [pause]. I like things to be a certain way, and I try to maintain that, it is who I am” (Assyrian, SWS 6.3)

“I would love to put it on top of me [pause]. Because it is important you know [pause], it should be. I am a proud man. But this is too hard [pause]. So, it is a long way [pause]. This is the truth of the situation” (Arabic, SWS 27.0)

“My husband he is a good man. He has been by my side through it all [pause], even when I thought I was going to die [pause], he is my strength.” (Arabic, SSpS 4.7)

“Our relationship is difficult. I am not who I should be for her. I think sometimes she would be better off without me. but we are not close like before [pause], how can we be, when I am like this” (Arabic, SSpS 12.2)

“My family look after me. Even the grandchildren see I am in pain and walk with me”

(Vietnamese SFS 4.6 cm)"

“This is my daughter. My daughter is very important to me. She lives with me and helps me a lot [pause], she is a good girl” (Assyrian, SFS 8.0)

“my belief is that God is the answer to everything. I turn to him when I am stressed or upset or in pain and believe that with his help, I will be cured” (Assyrian, 8.3 cm)

Physicality

“It is impossible to work as I want. I cannot lift a finger without the pain piercing right through me” (Assyrian SWS 22.9)

"I used to carry heavy machinery, and this is how my pain started. Even my hands are hurting, I cannot carry 1 k of anything with my hands, even when I pour myself tea from the teapot, even that is painful (SWS 22.4)

“I try to do what I can do. But I am not strong like before. It stops me a lot” (Assyrian, SWS 22.9)

“I can’t do things I used to. Believe me I was a sport person before this. I could run and play soccer and be social, but now I can hardly even walk” (Arabic, SRS 13.8 cm)

“My pain stops me from sitting or walking or being with people for long periods. I find this hard” (Assyrian, SRS 18.2 cm)

“I have a new baby you know. He is 4 months old. I can hardly hold him, but he is my blood. my family are my heart” (Arabic, SFS 4.0 cm)

“This is important … however the pain interferes with my ability to attend church. I am Catholic, and I cannot pray properly, because of my knees. This makes it hard”

(Vietnamese, SSS 11.8 cm)