Skip to main content

Table 4 Key recommendations for PROM developers

From: Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures

Recommendations for PROM developers:

• Consider how to involve service users in every phase of the development process

• Extensive service user involvement needs to be adequately planned and budgeted for

• Outcome measures from which items are taken are first checked that they have been co-constructed by service users and if not whether the items are acceptable to service users

• Include expert service users who are diverse

• Include expert service users who are able to reflect the views of other service users

• Involve expert service users in recruitment to studies, in data collection and analysis

• Provide service users with an opportunity to meet independently to voice their views and concerns and ensure that they are appropriately briefed

• Research teams should prepared to resolve disagreements by having some clear guidelines from the beginning about how to reach a resolution

• Researchers should be prepared to devote time and effort to make technical materials accessible to expert users

• How the impact of service user involvement throughout the PROM developmental process should be considered.