Skip to main content

Table 1 Items/sub-themes added by the expert user group in the theme and item generation stage

From: Public involvement in health outcomes research: lessons learnt from the development of the recovering quality of life (ReQoL) measures

  Item/sub-theme added What happened to that item?
1 Autonomy in my care This was dropped as it was more about ‘process’ rather than ‘outcome’
2 I am satisfied in my sex life This was dropped because it was felt that it may not be applicable to a number of service users
3 I felt stupid (self-criticism) The concept was covered by an item on self-blame and the item ‘I felt guilty’
4 I chastised myself for my mistakes This was covered by an item on ‘blame’
5 Dread (as opposed to anxious as being anxious can be a good thing at times) This idea was covered by the following items
‘I felt panic / terror’ ‘I worried too much’ ‘I had difficulty stopping or controlling my worry’
6 I am bothered by the side-effects of my medication This was dropped because it was felt that it may not be applicable to a number of service users
7 I am able to carry out day-to-day activities This was covered by the following few items:
‘I have reasons to get out of bed in the morning’
‘I could not get started with the simplest everyday tasks’
8 Sleeping too much The existing item on sleep was modified to encompass all sleep-related problems
9 Consumed by anger The item ‘I felt consumed by anger’ was added