From: Development of a symptom assessment in patients with myelofibrosis: qualitative study findings
Total combined sample (N = 23) N (%) | RUX- experienced total (n = 16) n (%) | RUX-naïve total (n = 7) n (%) | |
---|---|---|---|
Gender | |||
Female | 10 (43.5%) | 7 (43.8%) | 3 (42.9%) |
Male | 13 (56.5%) | 9 (56.3%) | 4 (57.1%) |
Age | |||
Range | 29.9–85.4 | 29.9–85.4 | 45.9–70.7 |
Mean (SD) | 65.5 (12.2) | 67.2 (15.5) | 58.7 (8.8) |
Ethnicity | |||
Not Hispanic/Latino | 23 (100.0%) | 16 (100.0%) | 7 (100.0%) |
Race | |||
White/Caucasian | 21 (91.3%) | 14 (87.5%) | 7 (100.0%) |
Othera | 2 (8.7%) | 2 (12.5%) | 0 (0.0%) |
Education | |||
High school diploma (or GED) or less | 5 (21.7%) | 3 (18.8%) | 2 (28.6%) |
Some college or certificate program | 5 (21.7%) | 4 (25.0%) | 1 (14.3%) |
College or university degree (2- or 4-year) | 7 (30.4%) | 3 (18.8%) | 4 (57.1%) |
Graduate degree | 6 (26.1%) | 6 (37.5%) | 0 (0.0%) |
Other | 1 (4.3%) | 1 (6.3%) | 0 (0.0%) |
Living status | |||
Living alone | 3 (13.0%) | 3 (18.8%) | 0 (0.0%) |
Living with family or friends | 18 (78.3%) | 12 (75.0%) | 6 (85.7%) |
Other | 2 (8.7%) | 1 (6.3%) | 1 (14.3%) |
Annual household income | |||
Under $25,000 | 2 (8.7%) | 1 (6.3%) | 1 (14.3%) |
$25,000 to $49,999 | 1 (4.3%) | 1 (6.3%) | 0 (0.0%) |
$50,000 to $74,999 | 6 (26.1%) | 4 (25.0%) | 2 (28.6%) |
$75,000 to $99,999 | 6 (26.1%) | 3 (18.8%) | 3 (42.9%) |
$100,000 and over | 4 (17.4%) | 4 (25.0%) | 0 (0.0%) |
Not answered | 4 (17.4%) | 3 (18.8%) | 1 (14.3%) |
Work status | |||
Working full-time | 5 (21.7%) | 2 (12.5%) | 3 (42.9%) |
Working part-time | 1 (4.3%) | 1 (6.3%) | 0 (0.0%) |
Retired | 14 (60.9%) | 12 (75.0%) | 2 (28.6%) |
Unemployed | 1 (4.3%) | 0 (0.0%) | 1 (14.3%) |
On disability | 2 (8.7%) | 1 (6.3%) | 1 (14.3%) |
Relationship status | |||
Single | 1 (4.3%) | 0 (0.0%) | 1 (14.3%) |
Have a significant other | 18 (78.3%) | 13 (81.3%) | 5 (71.4%) |
Married | 1 (4.3%) | 0 (0.0%) | 1 (14.3%) |
Divorced/Separated | 2 (8.7%) | 2 (12.5%) | 0 (0.0%) |
Widowed | 1 (4.3%) | 1 (6.3%) | 0 (0.0%) |
Health in general | |||
Excellent | 1 (4.3%) | 1 (6.3%) | 0 (0.0%) |
Very good | 4 (17.4%) | 3 (18.8%) | 1 (14.3%) |
Good | 8 (34.8%) | 3 (18.8%) | 5 (71.4%) |
Fair | 6 (26.1%) | 5 (31.3%) | 1 (14.3%) |
Poor | 4 (17.4%) | 4 (25.0%) | 0 (0.0%) |
Condition severity | |||
Mild | 6 (26.1%) | 1 (6.3%) | 5 (71.4%) |
Moderate | 12 (52.2%) | 11 (68.8%) | 1 (14.3%) |
Severe | 5 (21.7%) | 4 (25.0%) | 1 (14.3%) |