TY - JOUR AU - Eiser, C. AU - Jenney, M. PY - 2007 DA - 2007// TI - Measuring quality of life JO - Arch Dis Child VL - 92 UR - https://doi.org/10.1136/adc.2005.086405 DO - 10.1136/adc.2005.086405 ID - Eiser2007 ER - TY - JOUR AU - Brütt, A. L. AU - Sandberg, D. E. AU - Chaplin, J. AU - Wollmann, H. AU - Noeker, M. AU - Koltowska-Haggstrom, M. PY - 2009 DA - 2009// TI - Assessment of health-related quality of life and patient satisfaction in children and adolescents with growth hormone deficiency or idiopathic short stature - part 1: a critical evaluation of available tools JO - Horm Res VL - 72 ID - Brütt2009 ER - TY - JOUR AU - Bullinger, M. AU - Quitmann, J. AU - Power, M. AU - Herdman, M. AU - Mimoun, E. AU - DeBusk, K. PY - 2013 DA - 2013// TI - Assessing the quality of life of health-referred children and adolescents with short stature: development and psychometric testing of the QoLISSY instrument JO - Health Qual Life Outcomes VL - 11 UR - https://doi.org/10.1186/1477-7525-11-76 DO - 10.1186/1477-7525-11-76 ID - Bullinger2013 ER - TY - JOUR AU - Varni, J. W. AU - Burwinkle, T. M. AU - Katz, E. R. AU - Meeske, K. AU - Dickinson, P. PY - 2002 DA - 2002// TI - The PedsQL in pediatric cancer: reliability and validity of the pediatric quality of life inventory generic Core scales, multidimensional fatigue scale, and Cancer module JO - Cancer VL - 94 UR - https://doi.org/10.1002/cncr.10428 DO - 10.1002/cncr.10428 ID - Varni2002 ER - TY - JOUR AU - Chen, T. H. AU - Li, L. AU - Kochen, M. M. PY - 2005 DA - 2005// TI - A systematic review: how to choose appropriate health-related quality of life (HRQOL) measures in routine general practice? JO - The Journal of Zhejiang University Science B: Biomedicine & Biotechnology VL - 6 UR - https://doi.org/10.1631/jzus.2005.B0936 DO - 10.1631/jzus.2005.B0936 ID - Chen2005 ER - TY - JOUR AU - Bingham, C. O. AU - Noonan, V. K. AU - Auger, C. AU - Feldmann, D. E. AU - Ahmed, S. AU - Barlett, S. J. PY - 2017 DA - 2017// TI - Montreal accord on patient-reported outcomes use series - paper 4: patient-reported outcomes can infrom clinical decision making in chronic care JO - J Clin Epidemiol VL - 89 UR - https://doi.org/10.1016/j.jclinepi.2017.04.014 DO - 10.1016/j.jclinepi.2017.04.014 ID - Bingham2017 ER - TY - JOUR AU - Rüther, A. AU - Wang-Rieger, D. AU - Elstein, D. AU - Guyatt, G. PY - 2016 DA - 2016// TI - Aspects of patient reported outcomes in rare diseases: a discussion paper JO - Int J Technol Assess Health Care VL - 32 UR - https://doi.org/10.1017/S0266462316000271 DO - 10.1017/S0266462316000271 ID - Rüther2016 ER - TY - JOUR AU - Bullinger, M. PY - 2002 DA - 2002// TI - Assessing health related quality of life in medicine. An overview over concepts, methods and applications in international research JO - Restor Neurol Neurosci VL - 20 ID - Bullinger2002 ER - TY - JOUR AU - Versteegh, M. AU - Leunis, A. AU - Uyl-de Groot, C. AU - Stolk, E. PY - 2012 DA - 2012// TI - Condition-specific preference-based measures: benefit or burden? JO - Value Health VL - 15 UR - https://doi.org/10.1016/j.jval.2011.12.003 DO - 10.1016/j.jval.2011.12.003 ID - Versteegh2012 ER - TY - STD TI - Price VE, Klaassen RJ, Bolton-Maggs PH, Grainger JD, Curtis C, Wakefield C, et al. Measuring disease-specific quality of life in rare populations: a practical approach to cross-cultural translation. Health Qual Life Outcomes. 2009;7. ID - ref10 ER - TY - JOUR AU - Kaplan, R. M. AU - Ries, A. L. PY - 2007 DA - 2007// TI - Quality of life: concept and definition JO - COPD: J Chron Obstruct Pulmon Dis VL - 4 UR - https://doi.org/10.1080/15412550701480356 DO - 10.1080/15412550701480356 ID - Kaplan2007 ER - TY - STD TI - Quitmann J, Rohenkohl A, Sommer R, Bullinger M, Silva N. Explaining parent-child (dis)agreement in generic and short stature-specific health related quality of life reports: do family and social relationships matter? Health Qual Life Outcomes. 2016;14. ID - ref12 ER - TY - JOUR AU - Wu, H. H. AU - Li, H. AU - Gao, Q. PY - 2013 DA - 2013// TI - Psychometric properties of the Chinese version of the pediatric quality of life inventory 4.0 generic core scales among children with short stature JO - Health Qual Life Outcomes VL - 11 UR - https://doi.org/10.1186/1477-7525-11-87 DO - 10.1186/1477-7525-11-87 ID - Wu2013 ER - TY - JOUR AU - Stephen, M. D. AU - Varni, J. W. AU - Limbers, C. A. AU - Yafi, M. AU - Heptulla, R. A. AU - Renukuntla, V. S. PY - 2011 DA - 2011// TI - Health-related quality of life and cognitive functioning in pediatric short stature: comparison of growth-hormone-naive, growth-hormone-treated, and healthy samples JO - Eur J Pediatr VL - 170 UR - https://doi.org/10.1007/s00431-010-1299-z DO - 10.1007/s00431-010-1299-z ID - Stephen2011 ER - TY - JOUR AU - Theunissen, N. C. AU - Kamp, G. A. AU - Koopman, H. M. AU - Zwinderman, K. A. AU - Vogels, T. AU - Wit, J. M. PY - 2002 DA - 2002// TI - Quality of life and self-esteem in children treated for idiopathic short stature JO - J Pediatr VL - 140 UR - https://doi.org/10.1067/mpd.2002.123766 DO - 10.1067/mpd.2002.123766 ID - Theunissen2002 ER - TY - JOUR AU - Xu, X. AU - Wen, J. AU - Peng, D. X. AU - Liu, Y. PY - 2013 DA - 2013// TI - Quality of life in children with short stature: an analysis using PedsQL JO - Zhongguo dang dai er ke za zhi = Chinese journal of contemporary pediatrics VL - 15 ID - Xu2013 ER - TY - JOUR AU - Lem, A. AU - Jobse, I. AU - Kaay, D. AU - Ridder, M. AU - Raat, H. AU - Hokken-Koelega, A. PY - 2012 DA - 2012// TI - Health-related quality of life in short children born small for gestational age: effects of growth hormone treatment and postponement of puberty JO - Horm Res Paediatr VL - 77 UR - https://doi.org/10.1159/000337218 DO - 10.1159/000337218 ID - Lem2012 ER - TY - JOUR AU - Wit, J. M. AU - Clayton, P. E. AU - Rogol, A. D. AU - Savage, M. O. AU - Saenger, P. H. AU - Cohen, P. PY - 2008 DA - 2008// TI - Idiopathic short stature: definition, epidemiology, and diagnostic evaluation JO - Growth Hormon IGF Res VL - 18 UR - https://doi.org/10.1016/j.ghir.2007.11.004 DO - 10.1016/j.ghir.2007.11.004 ID - Wit2008 ER - TY - JOUR AU - Barstow, C. AU - Rerucha, C. PY - 2015 DA - 2015// TI - Evaluation of short and tall stature in children JO - Am Fam Physician VL - 92 ID - Barstow2015 ER - TY - JOUR AU - Abe, S. AU - Okumura, A. AU - Mukae, T. AU - Nakazawa, T. AU - Niijima, S. AU - Yamashiro, Y. PY - 2009 DA - 2009// TI - Depressive tendency in children with growth hormone deficiency JO - J Paediatr Child Health VL - 45 UR - https://doi.org/10.1111/j.1440-1754.2009.01586.x DO - 10.1111/j.1440-1754.2009.01586.x ID - Abe2009 ER - TY - JOUR AU - Silva, N. AU - Bullinger, M. AU - Sommer, R. AU - Rohenkohl, A. AU - Witt, S. AU - Quitmann, J. PY - 2018 DA - 2018// TI - Children's psychosocial functioning and parents' quality of life in paediatric short stature: the mediating role of caregiving stress JO - Clin Psychol Psychother VL - 25 UR - https://doi.org/10.1002/cpp.2146 DO - 10.1002/cpp.2146 ID - Silva2018 ER - TY - JOUR AU - Carel, J. AU - Chatelain, P. AU - Rochiccioli, P. AU - Chaussain, J. PY - 2003 DA - 2003// TI - Improvement in adult height after growth hormone treatment in adolescents with short stature born small for gestational age: results of a randomized controlled study JO - J Clin Endocrinol Metab VL - 88 UR - https://doi.org/10.1210/jc.2002-021123 DO - 10.1210/jc.2002-021123 ID - Carel2003 ER - TY - JOUR AU - Finkelstein, B. AU - Imperiale, T. AU - Speroff, T. AU - Marrero, U. AU - Radcliffe, D. AU - Cuttler, L. PY - 2002 DA - 2002// TI - Effect of growth hormone therapy on height in children with idiopatic short stature JO - Arch Pediatr Adolesc Med VL - 156 UR - https://doi.org/10.1001/archpedi.156.3.230 DO - 10.1001/archpedi.156.3.230 ID - Finkelstein2002 ER - TY - JOUR AU - Ranke, M. B. AU - Lindberg, A. PY - 2010 DA - 2010// TI - Obeserved and predicted growth responses in prepubertal children with growth disorders: guidance of growth hormone treatment by empirical variables JO - J Clin Endocrinol Metab VL - 95 UR - https://doi.org/10.1210/jc.2009-1471 DO - 10.1210/jc.2009-1471 ID - Ranke2010 ER - TY - JOUR AU - Wit, J. M. AU - Reiter, E. O. AU - Ross, J. L. AU - Saenger, P. H. AU - Savage, M. O. AU - Rogol, A. D. PY - 2008 DA - 2008// TI - Idiopathic short stature: management and growth hormone treatment JO - Growth Hormon IGF Res VL - 18 UR - https://doi.org/10.1016/j.ghir.2007.11.003 DO - 10.1016/j.ghir.2007.11.003 ID - Wit2008 ER - TY - JOUR AU - Bullinger, M. AU - Koltowska-Haggstrom, M. AU - Sandberg, D. AU - Chaplin, J. AU - Wollmann, H. AU - Noeker, M. PY - 2009 DA - 2009// TI - Health-related quality of life of children and adolescents with growth hormone deficiency or idiopathic short stature - part 2: available results and future directions JO - Horm Res VL - 72 UR - https://doi.org/10.1159/000232159 DO - 10.1159/000232159 ID - Bullinger2009 ER - TY - JOUR AU - Geisler, A. AU - Lass, N. AU - Reinsch, N. AU - Uysal, Y. AU - Singer, V. AU - Ravens-Sieberer, U. PY - 2012 DA - 2012// TI - Quality of life in children and adolescents with growth hormone deficiency: association with growth hormone treatment JO - Horm Res Paediatr VL - 78 UR - https://doi.org/10.1159/000341151 DO - 10.1159/000341151 ID - Geisler2012 ER - TY - JOUR AU - Schena, L. AU - Meazza, C. AU - Pagani, S. AU - Paganelli, V. AU - Bozzola, E. AU - Tinelli, C. PY - 2017 DA - 2017// TI - Efficacy of long-term growth hormone therapy in short non-growth hormone-deficient children JO - J Pediatr Endocrinol Metab VL - 30 UR - https://doi.org/10.1515/jpem-2016-0297 DO - 10.1515/jpem-2016-0297 ID - Schena2017 ER - TY - JOUR AU - Ahmid, M. AU - Perry, C. G. AU - Ahmed, S. F. AU - Shaikh, M. G. PY - 2016 DA - 2016// TI - Growth hormone deficiency during young adulthood and the benefits of growth hormone replacement JO - Endocrine Connections VL - 5 UR - https://doi.org/10.1530/EC-16-0024 DO - 10.1530/EC-16-0024 ID - Ahmid2016 ER - TY - JOUR AU - Cole, T. J. PY - 1990 DA - 1990// TI - The LMS method for constructing normalized growth standards JO - Eur J Clin Nutr VL - 44 ID - Cole1990 ER - TY - JOUR AU - Kromeyer-Hausschild, K. AU - Wabitsch, M. AU - Kunze, D. AU - Geller, F. AU - Geiß, H. AU - Hesse, V. PY - 2001 DA - 2001// TI - Perzentile für den Body-mass-Index für das Kindes- und Jugendalter unter Heranziehung verschiedener deutsche Stichproben JO - Monatsschr Kinderheilkd VL - 147 UR - https://doi.org/10.1007/s001120170107 DO - 10.1007/s001120170107 ID - Kromeyer-Hausschild2001 ER - TY - STD TI - FDA. Guidance for Industry Patient-Reported Outcome Measures: Use in Medical Product Development to Support Labeling Claims. Silver Spring, MD: Food and Drug Administration, 2009. ID - ref32 ER - TY - STD TI - The European QoLISSY Group. Quality of life in short stature youth. The QoLISSY questionnaire – User's manual. Lengerich: Pabst Science Publishers; 2013. ID - ref33 ER - TY - STD TI - Bullinger M, Sommer R, Pleil A, Mauras N, Ross J, Newfield R, et al. Evaluation of the American-English quality of life in short stature youth (QoLISSY) questionnaire in the United States. Health Qual Life Outcomes. 2015;13. ID - ref34 ER - TY - JOUR AU - Quitmann, J. AU - Giammarco, A. AU - Maghnie, M. AU - Napoli, F. AU - Giovanni, I. AU - Carducci, C. PY - 2017 DA - 2017// TI - Validation of the Italian quality of life in short stature youth (QoLISSY) questionnaire JO - J Endocrinol Investig VL - 40 UR - https://doi.org/10.1007/s40618-017-0667-1 DO - 10.1007/s40618-017-0667-1 ID - Quitmann2017 ER - TY - JOUR AU - Rohenkohl, A. AU - Schepper, J. AU - Vanderfaeillie, J. AU - Fricke, K. AU - Hendrickx, S. AU - Lagrou, K. PY - 2014 DA - 2014// TI - Validation of the Flemish version of the quality of life in short stature youth (QoLISSY) questionnaire JO - Acta Clin Belg VL - 69 UR - https://doi.org/10.1179/2295333714Y.0000000024 DO - 10.1179/2295333714Y.0000000024 ID - Rohenkohl2014 ER - TY - JOUR AU - Rohenkohl, A. AU - Stalman, S. AU - Kamp, G. AU - Bullinger, M. AU - Quitmann, J. PY - 2016 DA - 2016// TI - Psychometric performance of the quality of life in short stature youth (QoLISSY) questionnaire in the Netherlands JO - Eur J Pediatr VL - 175 UR - https://doi.org/10.1007/s00431-015-2656-8 DO - 10.1007/s00431-015-2656-8 ID - Rohenkohl2016 ER - TY - JOUR AU - Rohenkohl, A. AU - Sommer, R. AU - Bestges, S. AU - Kahrs, S. AU - Klingebiel, K. H. AU - Bullinger, M. PY - 2015 DA - 2015// TI - Leben mit Achondroplasie: Wie beurteilen junge Menschen mit disproportioniertem Kleinwuchs ihre Lebensqualität und mit welchen Faktoren ist sie assoziiert? JO - Zeitschrift für Kinder- und Jugendpsychiatrie und Psychotherapie VL - 43 UR - https://doi.org/10.1024/1422-4917/a000385 DO - 10.1024/1422-4917/a000385 ID - Rohenkohl2015 ER - TY - JOUR AU - Sommer, R. AU - Blömeke, J. AU - Bullinger, M. AU - Quitmann, J. PY - 2018 DA - 2018// TI - The psychometric evaluation of the quality of life in short stature youth (QoLISSY) instrument for German children born small for gestational age JO - Journal of Endcrinological Investigation VL - 41 UR - https://doi.org/10.1007/s40618-018-0850-z DO - 10.1007/s40618-018-0850-z ID - Sommer2018 ER - TY - STD TI - The KIDSCREEN Group Europe. The KIDSCREEN questionnaires: quality of life for children and adolescents – handbook. Lengrich: Pabst Science Publishers; 2006. ID - ref40 ER - TY - JOUR AU - Silva, N. AU - Bullinger, M. AU - Quitmann, J. AU - Ravens-Sieberer, U. AU - Rohenkohl, A. PY - 2013 DA - 2013// TI - HRQoL of European children and adolescents with short stature as assessed with generic (KIDSCREEN) and chronic-generic (DISABKIDS) instruments JO - Expert Rev Pharmacoecon Outcomes Res VL - 13 UR - https://doi.org/10.1586/14737167.2013.847366 DO - 10.1586/14737167.2013.847366 ID - Silva2013 ER - TY - BOOK AU - Corp, I. B. M. PY - 2012 DA - 2012// TI - IBM SPSS statistics for windows. 21.0 ed PB - IBM Corp CY - Armonk, NY ID - Corp2012 ER - TY - JOUR AU - Terwee, C. B. AU - Bot, S. D. AU - Boer, M. R. AU - Windt, D. A. AU - Knol, D. L. AU - Dekker, J. PY - 2007 DA - 2007// TI - Quality criteria were proposed for measurement properties of health status questionnaires JO - J Clin Epidemiol VL - 60 UR - https://doi.org/10.1016/j.jclinepi.2006.03.012 DO - 10.1016/j.jclinepi.2006.03.012 ID - Terwee2007 ER - TY - BOOK AU - Nunnally, J. PY - 1994 DA - 1994// TI - Psychometric theory 3 ed PB - McGraw-Hill CY - New York, NY ID - Nunnally1994 ER - TY - JOUR AU - Sneeuw, K. C. AU - Sprangers, M. A. AU - Aaronson, N. K. PY - 2002 DA - 2002// TI - The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease JO - J Clin Epidemiol VL - 55 UR - https://doi.org/10.1016/S0895-4356(02)00479-1 DO - 10.1016/S0895-4356(02)00479-1 ID - Sneeuw2002 ER - TY - JOUR AU - Landis, J. R. AU - Koch, G. G. PY - 1977 DA - 1977// TI - Measurement of observer agreement for categorical data JO - Biometrics VL - 33 UR - https://doi.org/10.2307/2529310 DO - 10.2307/2529310 ID - Landis1977 ER - TY - BOOK AU - Cohen, J. PY - 1988 DA - 1988// TI - Statistical power analysis for the behavioral sciences PB - Lawrence Erlbaum Associates, Inc CY - Hillsdale ID - Cohen1988 ER - TY - STD TI - Guyatt GH, Bombardier C, Tugwell PX. Measuring disease-specific quality of life in clinical trials. Can Med Assoc J. 1986;134. ID - ref48 ER - TY - STD TI - Varni JW, Burwinkle TM, Lane MM. Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application. Health Qual Life Outcomes. 2005;3. ID - ref49 ER - TY - JOUR AU - Klassen, A. F. AU - Miller, A. AU - Fine, S. PY - 2005 DA - 2005// TI - Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder JO - Child Care Health Dev VL - 32 UR - https://doi.org/10.1111/j.1365-2214.2006.00609.x DO - 10.1111/j.1365-2214.2006.00609.x ID - Klassen2005 ER - TY - JOUR AU - Eiser, C. AU - Morse, R. PY - 2001 DA - 2001// TI - Quality-of-life measures in chronic diseases of childhood JO - Health Technol Assess VL - 5 UR - https://doi.org/10.3310/hta5040 DO - 10.3310/hta5040 ID - Eiser2001 ER - TY - STD TI - Oerter R, Dreher E. Jugendalter: Kognitive Entwicklung. In: Oerter R, Montada L, editors. Entwicklungspsychologie. Beltz Verlage Weinheim, Basel, Berlin: Beltz Verlage; 2002. p. 273–6. ID - ref52 ER - TY - JOUR AU - Coq, E. M. AU - Boeke, A. J. P. AU - Bezemer, P. D. AU - Colland, V. T. AU - Eijk, J. T. M. PY - 2000 DA - 2000// TI - Which source should we use to measure quality of life in children with asthma: the children themselves or their parents? JO - Qual Life Res VL - 9 UR - https://doi.org/10.1023/A:1008977200176 DO - 10.1023/A:1008977200176 ID - Coq2000 ER -