Score distribution, % a | ||||||||
---|---|---|---|---|---|---|---|---|
Strongly disagree (1) | Disagree (2) | Somewhat agree (3) | Agree (4) | Strongly agree (5) | Missing data | Mdn (q1-q3) | ITC b | |
1. I daydream about how life with my relative was before the diagnosis of incurable illness was made. | 15.2 | 14.8 | 29.0 | 20.4 | 20.4 | 0.4 | 3 (2–4) | 0.603 |
2. I feel close to my relative who has incurable illness. | 0.74 | 0.0 | 7.44 | 27.8 | 63.7 | 0.8 | 5 (4–5) | 0.069 |
3. I seem to be more irritable since the diagnosis of incurable illness was made for my relative. | 20.7 | 24.4 | 28.5 | 17.8 | 8.2 | 0.3 | 3 (2–4) | 0.565 |
4. I am preoccupied with thoughts about my relative and his or her illness. | 1.9 | 9.6 | 23.7 | 30.4 | 33.7 | 0.7 | 4 (3–5) | 0.565 |
5. I have discovered new personal resources since my relative’s illness was diagnosed. | 11.1 | 21.1 | 27.8 | 25.9 | 13.7 | 0.3 | 3 (2–4) | −0.094 |
6. I very much miss my relative the way he or she used to be. | 5.6 | 11.1 | 19.6 | 23.0 | 40.4 | 0.4 | 4 (3–5) | 0.442 |
7. I have felt very much alone since the diagnosis of incurable illness was made for my relative. | 27.8 | 28.2 | 22.2 | 11.5 | 9.6 | 0.7 | 2 (1–3) | 0.626 |
8. I am able to move ahead with my life. | 3.7 | 10.7 | 29.6 | 35.9 | 18.5 | 1.5 | 4 (3–4) | 0.453 |
9. I blame myself for my relative’s illness. | 81.1 | 11.1 | 4.4 | 1.9 | 1.1 | 0.8 | 1 (1–1) | 0.444 |
10. I find it hard to concentrate on my work since my relative was diagnosed with incurable illness. | 20.7 | 20.4 | 33.0 | 19.0 | 6.7 | 0.4 | 3 (2–4) | 0.668 |
11. I have the personal resources to help me cope with my relative and his or her illness. | 2.6 | 10.8 | 35.2 | 38.6 | 11.9 | 1.1 | 4 (3–4) | 0.444 |
12. I have periods of tearfulness as I think about my relative’s illness. | 4.4 | 8.5 | 18.5 | 25.9 | 42.2 | 0.3 | 4 (3–5) | 0.583 |
13. I feel detached from my relative. | 62.6 | 24.4 | 9.6 | 2.2 | 0.3 | 0.7 | 1 (1–2) | 0.456 |
14. I feel a need to talk to others regarding my relative’s illness. | 10.0 | 11.1 | 33.7 | 30.0 | 14.8 | 0.4 | 3 (3–4) | 0.315 |
15. I feel it is unfair that my relative has incurable illness. | 10.4 | 11.9 | 13.7 | 20.4 | 43.0 | 0.7 | 4 (3–5) | 0.449 |
16. I find it hard to sleep since my relative was diagnosed with incurable illness. | 19.0 | 21.1 | 34.1 | 14.9 | 10.8 | 0.8 | 3 (2–4) | 0.637 |
17.No one will ever take the place of my relative in my life. | 5.2 | 5.6 | 16.7 | 15.2 | 57.0 | 0.4 | 5 (3–5) | 0.208 |
18. I avoid some people since my relative was diagnosed with incurable illness. | 62.6 | 15.6 | 10.4 | 8.2 | 3.0 | 0.4 | 1 (1–2) | 0.552 |
19. I feel I have adjusted to my relative’s illness. | 3.3 | 8.2 | 35.2 | 32.6 | 20.4 | 0.4 | 4 (3–4) | 0.145 |
20. Since my relative was diagnosed with incurable illness, I find it more difficult to get along with certain people. | 50.8 | 23.7 | 16.0 | 7.8 | 0.8 | 1.1 | 1 (1–2) | 0.558 |
21. I wonder what my life would be like if my relative had not been diagnosed with incurable illness. | 32.2 | 18.2 | 20.4 | 14.4 | 13.7 | 1.1 | 2 (1–4) | 0.614 |
22. I feel more competent since my relative was diagnosed with incurable illness. | 38.2 | 31.1 | 19.6 | 8.2 | 1.5 | 1.5 | 2 (1–3) | −0.019 |
23. I get angry when I think about my relative having incurable illness. | 28.9 | 23.0 | 22.6 | 10.4 | 14.4 | 0.8 | 2 (1–3.5) | 0.534 |
24. Since my relative was diagnosed with incurable illness, I don’t feel interested in keeping up with the day-to-day activities (TV, newspapers, friends). | 45.2 | 26.0 | 19.3 | 7.4 | 1.9 | 0.4 | 2 (1–3) | 0.670 |
25.I am unable to accept the fact that my relative is diagnosed with incurable illness. | 20.0 | 27.0 | 23.8 | 17.4 | 11.5 | 0.4 | 3 (2–4) | 0.605 |
26.I am now functioning about as well as before my relative was diagnosed with incurable illness. | 11.1 | 26.0 | 31.9 | 21.1 | 9.6 | 0.4 | 3 (2–4) | 0.607 |
27.I am planning for the future. | 17.4) | 24.1 | 31.9 | 13.3 | 12.6 | 0.8 | 3 (2–4) | 0.377 |