Table 4 Quality of Life Domains and Sub-Domains Identified Across the Included Studies
From: A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
Physical Domain 1. General physical QoL 2. Health behaviour 3. Sleep 4. Pain 5. Activities of daily living | |
Social Domain 1. Social QoL 2. Participation 3. Friends 4. Relationships 5. School / work | |
Psychological Domain 1. General psychosocial QoL 2. Happiness 3. Depression 4. Anxiety 5. Coping 6. Communication | |
Well-Being Domain 1. General well-being 2. Independence / self-care 3. Dignity 4. Energy / fatigue | |
Other Domain 1. Accessibility / wheelchair use 2. Healthcare service provision (impact related to access to formal care, medical aids etc) 3. Treatment related / therapy effects 4. Family resources (financial) 5. Carer burden 6. Impact on wider family (family functioning, siblings etc) |