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Table 1 Demographic and clinical characteristics of the sample

From: An evaluation of the psychometric properties of the sf-12v2 health survey among adults with hemophilia

Characteristics N (%)
Diagnosis
 Hemophilia A 169 (77.5)
 Hemophilia B 49 (22.5)
Gender
 Male 174 (79.5)
 Female 24 (11.0)
Age, mean (sd) 35.45 (12.3)
Race/Ethnicity
 White/Caucasian 150 (68.5)
 Othera 47 (21.5)
Marital Status
 Never Married 66 (30.1)
 Married 98 (44.7)
 Otherb 34 (20.1)
Education level
 Less than high school 9 (4.1)
 High school or technical school 30 (13.7)
 College degree 128 (58.4)
 Masters degree 17 (7.8)
 Doctoral degree 6 (2.7)
 Professional degree 8 (3.7)
Employment Status
 Employed/self–employed full time 103 (47.0)
 Employed part–time 23 (10.5)
 On disability 16 (7.3)
 Otherc 56 (25.6)
Region of the country
 Northeast 46 (21.0)
 Midwest 40 (18.3)
 South 54 (24.7)
 West 58 (26.5)
Health Insurance
 Public 61 (27.9)
 Private 113 (51.6)
 Both 6 (2.7)
 None 18 (8.2)
Symptom Severitye
 No symptoms 31 (14.2)
 Mild symptoms 67 (30.6)
 Moderate symptoms 61 (27.9)
 Severe symptoms 39 (17.8)
Treatment Regimen
 Always received on prophylaxis therapy 121 (55.3)
 Received both prophylaxis and on-demand therapy 31 (14.2)
 Always received on on-demand therapy 45 (20.5)
Number of bleeding episodes in the past year, mean (sd) 11.69 (19.1)
Hemophilia-related surgery
 Yes 73 (33.3)
 No 124 (56.6)
Comorbidities
 Hepatitis C 80 (36.5)
 HIVd 26 (11.9)
 Depression 84 (38.4)
 Inhibitors to clotting factor 41 (18.7)
Annual number of hemophilia-related visits, mean (sd)
 Hemophilia Treatment Center (HTC) 2.23 (3.1)
 Hematologist outside a HTC 0.83 (1.8)
 Primary Care Practitioner 2.42 (4.2)
  1. Note: SD, standard deviation; Frequencies for each demographic characteristic may not add up to the total sample size due to the presence of missing data
  2. aOther includes American Indian/Alaskan Native, Asian/Indian Asian, Native Hawaiian/Other Pacific Islander, Hispanic, etc.
  3. bOther includes divorced, separated, widowed, and not married, living with partner
  4. cOther includes retired, home–maker, student, seeking work, etc.
  5. dHIV Human Immunodeficiency Virus
  6. eBased on Patient Global Impression of Severity (PGI-S)