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Table 3 Prevalence of themes during interviews, overall and by role and child’s chronic condition

From: Content validity of the PROMIS® pediatric family relationships measure for children with chronic illness

Themes

# of interviews containing theme

(n = 32)

Child

Parent

Asthma (n = 6)

Type 1 diabetes

(n = 5)

Sickle cell disease

(n = 5)

Asthma (n = 6)

Type 1 diabetes

(n = 5)

Sickle cell disease

(n = 5)

Family Composition

31

6

5

5

5

5

5

Facets of Domain

       

 Sense of Family

29

6

4

3

6

5

5

 Support/Trust and Dependability

30

5

5

5

5

5

5

 Love and Caring

25

4

3

3

5

5

5

 Value and Acceptance

31

6

5

5

5

5

5

 Enjoyment

31

6

5

4

6

5

5

 Communication

28

5

4

4

5

5

5

Disease Impact

30

5

5

5

6

5

4

 Pre-probea

16

1

3

1

3

4

4

 Post-probea

29

5

5

5

5

5

4

  1. aIn interview guide, probes about disease impact were placed at the end of the interview, so in coding we distinguished between when these themes were found pre- and post-probing