Table 1 Concepts, sub concepts, and questions included in the interview guide
Step I | Step II | ||
|---|---|---|---|
Concept | Sub-concepts | Relevant references | Question |
Quality of life | Perception of the quality of life construct High and poor quality of life | Psychological/spiritual domain [62] WHO definition [26] | Can you tell me how you perceive the term quality of life? Please collaborate on sorting these photos in two piles. One representing a good quality of life, the other representing a poor quality of life. Provide each pile with three headlines. If not already answered through the exercise: What makes your quality of life good? What makes your quality of life poor? |
Participation | Perception of the participation construct Prioritizing participation (What do you prefer) | ICF [38] ICF, Activity and participation [38] Health and Functioning [62] | Can you tell me about how you perceive participation? What types of participation are important to you? |
Perception of environment | People around you | ICF, Environmental factors [38] Family domain, health and functioning domain, social and Economic domain [62] Environment [63] Interpersonal relations, social inclusion, rights [46] | How do your family and friend affect your quality of life and participation? How does the contact to the health system affect your quality of life and participation? |
Inclusion or differentiation | Tell me about the differences in being with others who also has a disability and being with others who have not got a disability. If you experience discrimination related to your disability; how do you experience it? | ||
Physical surroundings | What impact has the physical environment on your quality of life and participation? Can you tell me about whether it is possible to you to participate in what you would like to participate in? In what way does education/job impact on your quality of life and participation? How is your perception of Denmark as a country of residence when living with a disability? | ||
Perception of body & health | Physical | Health and Functioning [62] Biological functioning, symptoms, functional status, general health perceptions [63] Physical wellbeing [46] | Which impact has your physical capacity on your quality of life and participation? |
Mental | Which impact has your mental capacity on your quality of life and participation? | ||
Treatment | What does medications and treatment mean to your quality of life and participation? | ||
Pain | How does pain affect your quality of life and participation? | ||
Perception of personal factors | Future | Psychological/spiritual domain, health and functioning domain [62] Characteristics of the individual [63] Emotional wellbeing, material wellbeing, personal development, self-determination [46] | Please tell me about your dreams for the future (hope, fear, job situation, family) |
Coping | How do you handle your disabilities? What do you do when you face resistance? | ||
Desired perception | How would you prefer others to perceive you in relation to your disability? | ||
Dependence | How does it affect your self-worth when you are dependent/ independent of others? | ||
Economy | What does economic independence mean to you? | ||
Alcohol and drugs | Please share your thoughts about alcohol and drugs in relation to disability | ||
Sexuality | Can you tell me about sexuality and disability? | ||