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Table 2 Characteristics of caregiving for children with SCD

From: Quality of life among caregivers of sickle cell disease patients: a cross sectional study

Variables

Frequency

Percentage (%)

Primary caregiver

Participant

49

77.8

Partner

7

11.1

Other family member (grandmother, sister)

2

3.2

Alternating care (participant & partner)

5

7.9

Place of caregiving

Always home

52

82.5

Home and outside

9

14.3

Outside

2

3.2

Caregiver’s assessment of the level of care

Satisfactory

36

57.2

Acceptable to good

15

23.8

Moderately satisfactory

8

12.7

Unsatisfactory

4

6.3

Who is the caregiver?

Participant (exclusive)

45

71.4

Participant & partner

4

6.3

Partner (exclusive)

11

17.5

Other family member (grandmother, sister)

2

3.2

Nurse

1

1.6

Educational support

Participant

39

63.9

Participant & partner

5

8.2

Partner

11

18.0

Other family member (grandmother, sister)

4

6.6

Nurse

2

3.3

Communication with hospital and school

Participant

35

59.3

Participant & partner

5

8.5

Partner

17

28.8

Other family member (grandmother, sister)

2

3.4

Variable

Median

Quartile

Estimated cost of caregiving (SAR)

400

(50–1500)