From: Quality of life among caregivers of sickle cell disease patients: a cross sectional study
Variables | Frequency | Percentage (%) |
---|---|---|
Primary caregiver | ||
Participant | 49 | 77.8 |
Partner | 7 | 11.1 |
Other family member (grandmother, sister) | 2 | 3.2 |
Alternating care (participant & partner) | 5 | 7.9 |
Place of caregiving | ||
Always home | 52 | 82.5 |
Home and outside | 9 | 14.3 |
Outside | 2 | 3.2 |
Caregiver’s assessment of the level of care | ||
Satisfactory | 36 | 57.2 |
Acceptable to good | 15 | 23.8 |
Moderately satisfactory | 8 | 12.7 |
Unsatisfactory | 4 | 6.3 |
Who is the caregiver? | ||
Participant (exclusive) | 45 | 71.4 |
Participant & partner | 4 | 6.3 |
Partner (exclusive) | 11 | 17.5 |
Other family member (grandmother, sister) | 2 | 3.2 |
Nurse | 1 | 1.6 |
Educational support | ||
Participant | 39 | 63.9 |
Participant & partner | 5 | 8.2 |
Partner | 11 | 18.0 |
Other family member (grandmother, sister) | 4 | 6.6 |
Nurse | 2 | 3.3 |
Communication with hospital and school | ||
Participant | 35 | 59.3 |
Participant & partner | 5 | 8.5 |
Partner | 17 | 28.8 |
Other family member (grandmother, sister) | 2 | 3.4 |
Variable | Median | Quartile |
Estimated cost of caregiving (SAR) | 400 | (50–1500) |