Instrument | Domain | Caregiver-reported patients (3–26 years) n = 31 | Self-reported patients (12–17 years) n = 7 | Self-reported patients (18–58 years) n = 13 |
---|---|---|---|---|
CHQa | Physical functioning | −0.83* | − 0.58 | – |
Role/social–emotional (E)/behavioral (B) | −0.16 | −0.80† (E), –0.09 (B) | – | |
Role/social–physical | −0.68* | −0.89‡ | – | |
Bodily pain | −0.51‡ | −0.45 | – | |
Behavior | 0.38† | – | – | |
Global behavior | 0.22 | −0.29 | – | |
Mental health | −0.01 | −0.39 | – | |
Self-esteem | −0.28 | −0.14 | – | |
General health perceptions | −0.45† | −0.21 | – | |
Change in health | −0.08 | −0.23 | – | |
Parental impact-time | −0.01 | – | – | |
Parental impact-emotional | −0.04 | – | – | |
Family activities | −0.22 | −0.53 | – | |
Family cohesion | −0.22 | −0.64 | – | |
HUI3 | Vision | −0.21 | −0.29 | − 0.46 |
Hearing | −0.32 | −0.67 | − 0.10 | |
Speech | −0.66* | −0.84† | − 0.50 | |
Ambulation | −0.72* | 0.13 | −0.87§ | |
Dexterity | −0.73* | −0.87† | − 0.70‡ | |
Emotion | −0.42† | −0.65 | − 0.16 | |
Cognition | −0.55‡ | −0.85† | − 0.08 | |
Pain | −0.52‡ | 0.13 | −0.80‡ |