Table 4 Test–retest reliability of the shortened HS-FOCUS questionnaire for HS-FOCUS total score and domains
Stable patients based on GIS score | Caregiver-reported patients (3–26 years) n = 19 | Self-reported patients (12–58 years) n = 14 | ||||
|---|---|---|---|---|---|---|
Initial assessment at baseline | Follow-up at 2–4 weeks | ICC | Initial assessment at baseline | Follow-up at 2–4 weeks | ICC | |
Mean (SD) total score | 1.02 (0.77) | 1.00 (0.69) | 0.97 | 0.48 (0.53) | 0.46 (0.49) | 0.93 |
Lower body | 0.84 (0.98) | 0.95 (1.10) | 0.95 | 0.59 (0.74) | 0.48 (0.52) | 0.90 |
Upper body | 1.58 (0.89) | 1.61 (0.84) | 0.91 | 0.58 (0.6) | 0.48 (0.41) | 0.83 |
School/work | 0.59 (0.48) | 0.59 (0.54) | 0.71 | 0.19 (0.53) | 0.13 (0.35) | 0.92 |
Activities | 1.05 (1.1) | 0.84 (0.76) | 0.68 | 0.49 (0.65) | 0.51 (0.69) | 0.79 |
Breathing | 0.92 (0.89) | 0.93 (0.85) | 0.86 | 0.52 (0.53) | 0.52 (0.82) | 0.73 |