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Table 3 Internal consistency at baseline and follow-up by patient type for HS-FOCUS total score and domains

From: Validation of the shortened Hunter Syndrome-Functional Outcomes for Clinical Understanding Scale (HS-FOCUS)

 

Caregiver-reported patients (3–26 years)

Self-reported patients (12–58 years)

Initial assessment at baseline (n = 25)

Follow-up at 2–4 weeks (n = 25)

Initial assessment at baseline (n = 12)

Follow-up at 2–4 weeks (n = 13a)

Cronbach’s alpha

0.89

0.86

0.94

0.92

Cronbach’s alpha with item deleted

Lower body

0.84

0.77

0.93

0.88

Upper body

0.86

0.82

0.93

0.95

School/work

0.91

0.88

0.92

0.89

Activities

0.88

0.84

0.93

0.87

Breathing

0.85

0.81

0.90

0.89

  1. Cronbach’s alpha > 0.70 was considered as an acceptable level of internal consistency
  2. aOne patient had missing domain scores at initial assessment but had data for all domain scores at follow-up