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Table 1 Caregiver burden domains and corresponding NSOC questions

From: Socioeconomic and demographic factors modify observed relationship between caregiving intensity and three dimensions of quality of life in informal adult children caregivers

Social Strain
In the last month, did helping [SP] ever …
 • Keep you from visiting in person with friends or family not living with you?
 • Keep you from religious services?
 • Keep you from participating in club meetings or group activities?
 • Keep you from going out for enjoyment?
 • Keep you from working for pay?
 • Keep you from doing volunteer work?
 • Keep you from providing care for a child or other adult?
Negative Emotional Burden
Thinking about the last month, how often did you … .
 • Feel bored?
 • Feel lonely?
 • Feel upset?
Over the last month, how often have you … .
 • Had little interest or pleasure in doing things?
 • Felt down, depressed, or hopeless?
 • Felt nervous, anxious, or on edge?
 • Been unable to stop or control worrying?
 • I gave up trying to improve my life a long time ago.
 • I often feel lonely because I have few close friends.
 • How much does [SP] argue with you?
 • How often does [SP] get on nervous?
 • Helping older relatives can be difficult. Is helping [SP] emotionally difficult for you?
Positive Emotional Benefit
 • My life has meaning and purpose.
 • In general, I feel confident and good about myself
 • I like my living situation very much.
 • I have an easy time adjusting to changes.
 • I get over (recover from) illness and hardship quickly.
Thinking about the last month, how often did you …
 • Feel cheerful?
 • Feel calm and peaceful?
 • Feel full of life?
 • How much do you enjoy being with [SP]?
 • How much does [SP] appreciate what you do for them?
 • Helping [SP] has made you more confident about your abilities.
 • Helping [SP] has taught you how to deal difficult situations.
 • Helping [SP] has brought you closer to them.
 • Helping [SP] gives you satisfaction that they are well cared for.
  1. [SP] NHATS sample person