Table 1 Summary of Patient-Reported Outcomes by timing of assessment
PRO Baseline Assessment (at study entry) | |
Concept | Data source |
 Generic Quality of Life |  EORTC QLQ-C30 |
 Disease specific Quality of Life |  EORTC QLQ-MY20 |
 Information Provision |  EORTC QLQ-INFO25 |
 Patient’s perception of involvement in treatment decisions |  Adapted Control Preference Scale |
 Satisfaction with care, prognostic information and personal values |  Ad hoc questions |
PRO follow-up assessments (3, 6, 12 and 24th month) | |
Concept | Data source |
 Generic Quality of Life |  EORTC QLQ-C30 |
 Disease specific Quality of Life |  EORTC QLQ-MY20 |