Table 1 Patient characteristics (n = 515)
From: The impact of severe haemophilia and the presence of target joints on health-related quality-of-life
Age (mean ± SD) | 37.7 ± 15.0 |
Age categories (%) | |
18–30 | 205 (39.8%) |
31–40 | 119 (62.9%) |
41–50 | 89 (17.3%) |
51–60 | 50 (9.7%) |
61 + | 52 (10.1%) |
Subtype (%) | |
Haemophilia A | 400 (77.7%) |
Haemophilia B | 115 (22.3%) |
Country (%) | |
France | 180 (35.0%) |
Germany | 96 (18.6%) |
Italy | 118 (22.9%) |
Spain | 84 (16.3%) |
UK | 37 (7.2%) |
Treatment Strategy (%) | |
On-demand | 201 (39.0%) |
Primary prophylaxis | 314 (61.0%) |
Physician-reported comorbidities | |
Depression | 77 (15.0%) |
Anxiety | 84 (16.5%) |
Target joints (total) | 714 |
Target joints (mean ± SD (range)) | 1.39 ± 1.44 (0–9) |
Number of target joints (patient n, %) | |
Zero | 157 (30.5%) |
One | 153 (29.7%) |
Two | 130 (25.2%) |
Three or more | 75 (14.6%) |
Location of target joints (patient n, %) | |
Exclusively upper body | 92 (25.7%) |
Exclusively lower body | 188 (52.5%) |
Upper and lower body | 78 (21.8%) |