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Table 1 Characteristics of the study sample (n = 1040)

From: Multicentre cross-sectional clinical evaluation study about quality of life in adults with disorders/differences of sex development (DSD) compared to country specific reference populations (dsd-LIFE)

Variables Categories Number %
Diagnosis Turner syndrome 301 28.9
Klinefelter Syndrome 218 21.0
47,XYY 1 0.0
46,XX CAH 226 21.7
46,XX DSD
- XX gonadal dysgenesis
- XX ovotesticular DSD
- XX, males
27 2.6
46,XY DSD
- complete/partial XY gonadal dysgenesis
- complete/partial androgen insensitivity syndrome
- androgen synthesis defects
- severe hypospadias
- others
222 21.3
45,X/46XY 45 4.3
Age mean (SD) 32.4 (13.6)
≤ 19 years 193 18.6
20–24 years 185 17.8
25–44 years 458 44.0
45–64 years 178 17.1
≥ 65 years 26 2.5
Gender Female 717 68.9
Male 311 29.9
Other than female or male 12 1.2
Education Low (ESISCED 1–2) 202 19.4
Middle (ESISCED 3–5) 453 43.6
High (ESISCED 6–7) 266 25.6
Other 63 60.6
Not available 56 5.4
Feeling about household income Living comfortable on present income 339 32.6
Coping with present income 393 37.8
Finding it (very) difficult to live on present income 128 12.3
Other 16 1.5
Not available 164 15.8
Relationship status Being single 246 23.7
Having a partner 382 36.7
Living with parents 321 30.9
Other 37 3.6
Not available 54 5.2
Health status How is your health in general?
Would you say it is …
  
 Very bad 13 1.3
 Bad 72 6.9
 Fair 282 27.1
 Good 494 47.5
 Very good 123 11.8
 Not available 56 5.4
Do you have any longstanding illness? (apart from your condition)  
 No 461 44.3
 Don’t know or not available 100 9.6
 Yes 479 46.1
  If yes, physical health problem 316
   Mental health problem 37
   Both (physical and mental) 83
   Not available 43