Table 1 Characteristics of the study sample (n = 1040)
Variables | Categories | Number | % |
|---|---|---|---|
Diagnosis | Turner syndrome | 301 | 28.9 |
Klinefelter Syndrome | 218 | 21.0 | |
47,XYY | 1 | 0.0 | |
46,XX CAH | 226 | 21.7 | |
46,XX DSD - XX gonadal dysgenesis - XX ovotesticular DSD - XX, males | 27 | 2.6 | |
46,XY DSD - complete/partial XY gonadal dysgenesis - complete/partial androgen insensitivity syndrome - androgen synthesis defects - severe hypospadias - others | 222 | 21.3 | |
45,X/46XY | 45 | 4.3 | |
Age | mean (SD) | 32.4 (13.6) | |
≤ 19 years | 193 | 18.6 | |
20–24 years | 185 | 17.8 | |
25–44 years | 458 | 44.0 | |
45–64 years | 178 | 17.1 | |
≥ 65 years | 26 | 2.5 | |
Gender | Female | 717 | 68.9 |
Male | 311 | 29.9 | |
Other than female or male | 12 | 1.2 | |
Education | Low (ESISCED 1–2) | 202 | 19.4 |
Middle (ESISCED 3–5) | 453 | 43.6 | |
High (ESISCED 6–7) | 266 | 25.6 | |
Other | 63 | 60.6 | |
Not available | 56 | 5.4 | |
Feeling about household income | Living comfortable on present income | 339 | 32.6 |
Coping with present income | 393 | 37.8 | |
Finding it (very) difficult to live on present income | 128 | 12.3 | |
Other | 16 | 1.5 | |
Not available | 164 | 15.8 | |
Relationship status | Being single | 246 | 23.7 |
Having a partner | 382 | 36.7 | |
Living with parents | 321 | 30.9 | |
Other | 37 | 3.6 | |
Not available | 54 | 5.2 | |
Health status | How is your health in general? Would you say it is … | ||
Very bad | 13 | 1.3 | |
Bad | 72 | 6.9 | |
Fair | 282 | 27.1 | |
Good | 494 | 47.5 | |
Very good | 123 | 11.8 | |
Not available | 56 | 5.4 | |
Do you have any longstanding illness? (apart from your condition) | |||
No | 461 | 44.3 | |
Don’t know or not available | 100 | 9.6 | |
Yes | 479 | 46.1 | |
If yes, physical health problem | 316 | – | |
Mental health problem | 37 | – | |
Both (physical and mental) | 83 | – | |
Not available | 43 | – | |