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Table 5 Chronic Health-Related Conditions in Patients with CDH

From: Health-related quality of life in children and adolescents with congenital diaphragmatic hernia: a cross-sectional study

Patient QoL Score Age, Sex Hospital Readmissionsa (N) Major Health Issues or Conditionsb, c
Child Report Parent Report
1 NA 90.3 6 mo, M 1 RRI
2 NA 78.6 7 mo, M 1 DOR, DOE, RRI
3 NA 91.4 10 mo, M 0 Surgery (clubfoot), RRI
4 NA 95.0 3 mo, M 0 None
5 NA 80.6 20 mo, M 1 Oral aversion, malnourished, DOE, RRI, inguinal hernia repair
6 NA 86.0 22 mo, M 2 RRI, DOE
7 NA 82.2 23 mo, M 6 RRI, atopic dermatitis, inguinal hernia repair, orchidopexy
8 NA 66.3 16 mo, F 0 Multicystic kidney, IQ < 70
9 NA 82.1 4 y, F 7 Galactosemia, cataract surgery, RRI, IQ < 70
10 NA 95.2 3 y, M 1 Surgery (SBO, CDH reherniation)
11 NA 94 3 y, M 0 None
12 NA 100 4 y, M 5 DOE, DOR, nocturnal dyspnea, RRI
13 NA 96.4 4 y, F 0 RRI
14 NA 95.2 4 y, M 0 RRI
15 NA 89.3 4 y, M 2 RRI
16 NA 39.1 5 y, M 4 IQ < 70, hyperactivity disorder, DOE, RRI, NPF-up
17 63.0 89.1 5 y, F 0 RRI
18 73.9 84.9 5 y, F 1 RRI
19 81.8 85.9 5 y, F 0 RRI, DOE
20 78.3 82.6 5 y, F 0 None
21 45.7 83.7 5 y, M 2 RRI, asthma, IQ < 70
22 NA 35.8 7 y, M 4 IQ < 70, cerebral palsy, DOE, RRI, NPF-up, difficulty walking, surgeries (CDH reherniation, SBO)
23 76.1 53.3 7 y, F 15 Severe pectus excavatum, RRI, DOE, DOR, oral aversion, GERD, IQ < 70, NPF-up, pain ambulating, surgery (SBO)
24 62.0 72.8 8 y, F 4 DOE, RRI, hydronephrosis, surgeries (CDH reherniation, neck fistula, preauricular tag)
25 85.9 84.8 8 y, M 6 DOE, RRI, surgery (equinovarus, orchidopexy)
26 94.6 81.5 9 y, M 13 NPF-up, oral aversion, malnourished, GERD, DOE, RRI, surgeries (adenoidectomy, abdominal patch removal)
27 81.5 82.6 10 y, F 1 Surgery (SBO)
28 52.2 54.8 11 y, F 4 NPF-up, seizures, GERD, DOE, hearing and visual impairment, surgery (SBO)
29 75.0 89.1 11 y, M 3 Oral aversion, pain ambulating, selective mutism, NPF-up
30 66.3 67.3 12 y, M 1 Adenoidectomy
31 89.1 86.9 12 y, F 0 Congenital blindness, attending special school, NPF-up
32 71.7 80.0 12 y, M 5 DOE, RRI, surgeries (inguinal hernia repair, orchidopexy)
33 91.3 88.0 13 y, M 2 RRI, orchidopexy
34 68.5 92.4 13 y, M 5 NPF-up, IQ < 70, learning difficulties, vomiting, RRI, surgeries (SBO, closure ductus Botalli)
35 95.7 98.9 13 y, M 2 Surgeries (orchidopexy, hydrocele repair)
36 79.4 58.69 14 y, F 1 Brace therapy (scoliosis), pain ambulating
37 79.4 58.7 14 y, M 0 Primary night enuresis, NPF-up
38 83.7 100 14 y, M 3 Atopic asthma
39 45.7 78.3 15 y, F 2 DOE, adenoidectomy
40 64.1 70.7 15 y, M 1 GERD, chest pain
41 67.4 73.9 15 y, M 3 CVI due to AV malformation, residual hemiparesis, loss of visual field, NPF-up
42 64.1 77.2 17 y, M 4 Bronchiectasis, GERD, DOE, RRI
43 91.3 92.4 18 y, F 1 Pain ambulating
44 93.5 88.0 20 y, M 2 None
45 78.3 90.2 20 y, F 0 Hashimoto thyroiditis, DOE
  1. AV Arteriovenous, CDH Congenital diaphragmatic hernia, CVI Cerebrovascular insult, DOE Dyspnea on exertion, DOR Dyspnea on rest, F Female, GERD Gastroesophageal reflux disease, IQ Intelligence quotient, M Male, N Number, NA Not applicable, NPF-up Neurologic and/or psychiatric follow-up, QoL Quality of life, RRI Recurrent respiratory infection, SBO Small-bowel obstruction
  2. aReadmissions account for all hospitalizations after discharge from initial treatment; b Information was obtained from medical records and by interview; c Includes some major morbidities or surgical procedures during initial hospitalization for treatment of CDH and all comorbidities after initial discharge