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Table 5 Chronic Health-Related Conditions in Patients with CDH

From: Health-related quality of life in children and adolescents with congenital diaphragmatic hernia: a cross-sectional study

Patient

QoL Score

Age, Sex

Hospital Readmissionsa (N)

Major Health Issues or Conditionsb, c

Child Report

Parent Report

1

NA

90.3

6 mo, M

1

RRI

2

NA

78.6

7 mo, M

1

DOR, DOE, RRI

3

NA

91.4

10 mo, M

0

Surgery (clubfoot), RRI

4

NA

95.0

3 mo, M

0

None

5

NA

80.6

20 mo, M

1

Oral aversion, malnourished, DOE, RRI, inguinal hernia repair

6

NA

86.0

22 mo, M

2

RRI, DOE

7

NA

82.2

23 mo, M

6

RRI, atopic dermatitis, inguinal hernia repair, orchidopexy

8

NA

66.3

16 mo, F

0

Multicystic kidney, IQ < 70

9

NA

82.1

4 y, F

7

Galactosemia, cataract surgery, RRI, IQ < 70

10

NA

95.2

3 y, M

1

Surgery (SBO, CDH reherniation)

11

NA

94

3 y, M

0

None

12

NA

100

4 y, M

5

DOE, DOR, nocturnal dyspnea, RRI

13

NA

96.4

4 y, F

0

RRI

14

NA

95.2

4 y, M

0

RRI

15

NA

89.3

4 y, M

2

RRI

16

NA

39.1

5 y, M

4

IQ < 70, hyperactivity disorder, DOE, RRI, NPF-up

17

63.0

89.1

5 y, F

0

RRI

18

73.9

84.9

5 y, F

1

RRI

19

81.8

85.9

5 y, F

0

RRI, DOE

20

78.3

82.6

5 y, F

0

None

21

45.7

83.7

5 y, M

2

RRI, asthma, IQ < 70

22

NA

35.8

7 y, M

4

IQ < 70, cerebral palsy, DOE, RRI, NPF-up, difficulty walking, surgeries (CDH reherniation, SBO)

23

76.1

53.3

7 y, F

15

Severe pectus excavatum, RRI, DOE, DOR, oral aversion, GERD, IQ < 70, NPF-up, pain ambulating, surgery (SBO)

24

62.0

72.8

8 y, F

4

DOE, RRI, hydronephrosis, surgeries (CDH reherniation, neck fistula, preauricular tag)

25

85.9

84.8

8 y, M

6

DOE, RRI, surgery (equinovarus, orchidopexy)

26

94.6

81.5

9 y, M

13

NPF-up, oral aversion, malnourished, GERD, DOE, RRI, surgeries (adenoidectomy, abdominal patch removal)

27

81.5

82.6

10 y, F

1

Surgery (SBO)

28

52.2

54.8

11 y, F

4

NPF-up, seizures, GERD, DOE, hearing and visual impairment, surgery (SBO)

29

75.0

89.1

11 y, M

3

Oral aversion, pain ambulating, selective mutism, NPF-up

30

66.3

67.3

12 y, M

1

Adenoidectomy

31

89.1

86.9

12 y, F

0

Congenital blindness, attending special school, NPF-up

32

71.7

80.0

12 y, M

5

DOE, RRI, surgeries (inguinal hernia repair, orchidopexy)

33

91.3

88.0

13 y, M

2

RRI, orchidopexy

34

68.5

92.4

13 y, M

5

NPF-up, IQ < 70, learning difficulties, vomiting, RRI, surgeries (SBO, closure ductus Botalli)

35

95.7

98.9

13 y, M

2

Surgeries (orchidopexy, hydrocele repair)

36

79.4

58.69

14 y, F

1

Brace therapy (scoliosis), pain ambulating

37

79.4

58.7

14 y, M

0

Primary night enuresis, NPF-up

38

83.7

100

14 y, M

3

Atopic asthma

39

45.7

78.3

15 y, F

2

DOE, adenoidectomy

40

64.1

70.7

15 y, M

1

GERD, chest pain

41

67.4

73.9

15 y, M

3

CVI due to AV malformation, residual hemiparesis, loss of visual field, NPF-up

42

64.1

77.2

17 y, M

4

Bronchiectasis, GERD, DOE, RRI

43

91.3

92.4

18 y, F

1

Pain ambulating

44

93.5

88.0

20 y, M

2

None

45

78.3

90.2

20 y, F

0

Hashimoto thyroiditis, DOE

  1. AV Arteriovenous, CDH Congenital diaphragmatic hernia, CVI Cerebrovascular insult, DOE Dyspnea on exertion, DOR Dyspnea on rest, F Female, GERD Gastroesophageal reflux disease, IQ Intelligence quotient, M Male, N Number, NA Not applicable, NPF-up Neurologic and/or psychiatric follow-up, QoL Quality of life, RRI Recurrent respiratory infection, SBO Small-bowel obstruction
  2. aReadmissions account for all hospitalizations after discharge from initial treatment; b Information was obtained from medical records and by interview; c Includes some major morbidities or surgical procedures during initial hospitalization for treatment of CDH and all comorbidities after initial discharge