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Table 1 Table showing the principal item changes between the first and final version of the questionnaire

From: How patient participation was used to develop a questionnaire that is fit for purpose for assessing quality of life in severe asthma

Initial questionnaire item(s) presented to focus groups Final questionnaire item(s) after iterative changes
3. I am restricted in my family life. For example: child care, family responsibilities. 6. My family life – how it affects me. For example: caring for children, family responsibilities.
7. My family life – how it affects others. For example: others taking time off work, problems with childcare, family members becoming upset.
10. I worry about my asthma and treatment in the future. For example, asthma getting worse, long term side effects of medicines. 11. Worry that asthma may get worse. For example, medicines no longer help, more frequent attacks.
12. Long term side effects of medicines. For example, cataracts, diabetes, bone fracture.
12. My sleep is disturbed. For example, difficulty going to sleep, being woken very easily, waking often at night. 14. Problems at night. For example, difficulty going to sleep, being woken very easily, waking often at night.
13. I dislike the way I look. For example, I don’t like my weight, my skin bruises easily.
15. I get embarrassed. For example, I don’t like using my medicines in public, I don’t like having asthma symptoms in public.
15. The way I look. For example, my weight, my skin bruises easily, using medicines in public, other people judging me.