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Table 8 Full Version of the EPDDv3

From: Development and content validation of a patient-reported endometriosis pain daily diary

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Item / instruction

Response options

Logic

EPDDv3 (core)

1

The first questions are about vaginal bleeding or spotting that could happen during your period or between periods

1a

During the past 24 h, did you have any vaginal bleeding or spotting?

Checklist:

Yes or No

If no, go to Section 2

1b

During the past 24 h, have you been on your period?

Checklist:

Yes or No

n/a

2

The next question is about pain. Please be sure to think only about pain related to your endometriosis when answering this question.

2a

During the past 24 h, at its worst, how severe was your endometriosis-related pain?

Numeric rating scale:

0 (No pain) to 10 (worst pain imaginable)

n/a

3

The next questions are about sexual activity and pain. When answering, think only about pain that occurs during vaginal penetration.

3a

During the past 24 h, did you engage in any sexual activity that involved full vaginal penetration?

Checklist:

Yes or No

If no, go to item 3c

3b

During the past 24 h, at its worst, how would you rate your level (degree) of pain felt during or following vaginal penetration?

Numeric rating scale:

0 (No pain) to 10 (worst pain imaginable)

n/a

Note: Question only asked if answer to question 3a is yes

EPDDv3 (extended)

3c

During the past 24 h, did you choose not to have any sexual activity that involved full vaginal penetration for any reason, even though you had the chance?

Checklist:

Yes or No

If no, go to item 3e

3d

During the past 24 h, did you choose not to have any sexual activity that involved full vaginal penetration because of your endometriosis?

Checklist:

Yes or No

n/a

Note: Question only asked if answer to question 3c is yes

3e

During the past 24 h, did your desire toward sexual intimacy decrease due to your endometriosis?

Checklist:

Yes or No

n/a

4

The following questions are about your daily activities during the past 24 h.

4a

During the past 24 h, how difficult has it been to do your daily activities?

Numeric rating scale:

0 (not difficult) to 10 (extremely difficult)

n/a

5

On the next screens you will be asked to record the medication you took for your endometriosis-related pain.

5a

During the past 24 h, did you use your rescue medication for your endometriosis-related pain?

Checklist:

Yes or No

If yes, go to item 5b

If no, end

5b

During the past 24 h, how many tablets of your rescue medication did you use?

Spinner range 0–20

n/a

Note: Screen only displayed if answer to question 5a is yes