Instrument | Author | Year | Full name | Country | Type of disease | Mode of administration | Recall period | Completion time | Number of items | Response options | Number of domains | What scores | Range of scores |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|
For paediatrics | |||||||||||||
 IMPACT | Griffiths AM [19] | 1999 | The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease | Canada | PIBD | Self | NA | 10 ~ 15 min | 33 | 7 cm VAS | 6 | Total, domain | 0 ~ 231(worst-best) |
 IMPACT-II | Loonen HJ [20] | 2002 | The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease II | Netherlands | PIBD | Self | Past 2 weeks | 10 ~ 15 min | 35 | 7 cm VAS | 6 | Total, domain | 0 ~ 245(worst-best) |
 IMPACT-III | Ogden CA [21] | 2008 | The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease III | UK | PIBD | Self | Past 2 weeks | 10 ~ 15 min | 35 | 0–4 Likert | 5 | Total, domain | 0 ~ 100(worst-best) |
For adults | |||||||||||||
 IBDQ-32 | Guyatt G [22] | 1989 | The 32-item Inflammatory Bowel Disease Questionnaire | Canada | IBD | Self, rater | Past 2 weeks | NA | 32 | 1–7 Likert | 4 | Total, domain | 32 ~ 224(worst-best) |
 SIBDQ* | Irvine EJ [23] | 1996 | The Short Inflammatory Bowel Disease Questionnaire | Canada | IBD | Self, rater, IVRS | Past 2 weeks | <10 min | 10 | 1–7 Likert | 4 | Total, domain | 10 ~ 70(worst-best) |
 IBDQ-36 | Love JR [24] | 1992 | The 36-item Inflammatory Bowel Disease Questionnaire | Canada | IBD | Self | Past 2 weeks | NA | 36 | 1–7 Likert | 5 | Total, domain | 1 ~ 7(worst-best) |
 IBDQ-9* | Alcalá MJ [25] | 2004 | The 9-item Inflammatory Bowel Disease Questionnaire | Spain | IBD | Self, rater | Past 2 weeks | NA | 9 | 1–7 Likert | 1 | Total | 0 ~ 100(worst-best) |
 RFIPC | Drossman DA [26] | 1991 | The Rating Form of IBD Patient Concerns | USA | IBD | Self | Today | NA | 25 | 100-mm VAS | 4 | Total, domain | 0 ~ 100(best-worst) |
 CCQIBD | Farmer RG [27] | 1992 | The Cleveland Clinic Questionnaire for Inflammatory Bowel Disease | USA | IBD | Self | Past 2 months | 15 ~ 20 min | 47 | 1–5 Likert | 4 | Total | 31 ~ 90(worst-best) |
 PIBDQL | Martin A [28] | 1995 | The Padova Inflammatory Bowel Disease Quality of Life | Italy | IBD* | Self | NA | NA | 29 | 0–3 Likert | 4 | Total, domain | 0 ~ 87(best-worst) |
 CGQL | Fazio VW [29] | 1999 | The Cleveland Global Quality of Life | USA | IBD* | Self, rater | Today | NA | 3 | 0–10 VAS | 3 | Total, domain | 0 ~ 1(worst-best) |
 SHS | Hjortswang H [30] | 2001 | The Short Health Scale | Sweden | IBD | Self | NA | NA | 4 | 100-mm VAS | 4 | domain | 0 ~ 100(best-worst) |
 EIBDQ | Smith GD [31] | 2002 | The Edinburgh Inflammatory Bowel Disease Questionnaire | UK | IBD | Self | Past 2 weeks | NA | 13 | 0–1 or 0–3 Likert | 3 | Domain | NA(NA) |
 CLIQ | Wilburn J [33] | 2015 | The Crohn’s Life Impact Questionnaire | UK | CD | NA | NA | NA | 36 | NA | 2 | Total, domain | NA(best-worst) |
 CUCQ | Alrubaiy L [32] | 2015 | The Crohn’s and ulcerative colitis questionnaire | UK | IBD | Self | Past 2 weeks | <10 min | 8 | 0–3 Likert | 1 | Total | NA(best-worst) |