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Table 1 Characteristics of the included instruments

From: Inflammatory bowel disease-specific health-related quality of life instruments: a systematic review of measurement properties

Instrument

Author

Year

Full name

Country

Type of disease

Mode of administration

Recall period

Completion time

Number of items

Response options

Number of domains

What scores

Range of scores

For paediatrics

 IMPACT

Griffiths AM [19]

1999

The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease

Canada

PIBD

Self

NA

10 ~ 15 min

33

7 cm VAS

6

Total, domain

0 ~ 231(worst-best)

 IMPACT-II

Loonen HJ [20]

2002

The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease II

Netherlands

PIBD

Self

Past 2 weeks

10 ~ 15 min

35

7 cm VAS

6

Total, domain

0 ~ 245(worst-best)

 IMPACT-III

Ogden CA [21]

2008

The Quality-of-Life Index for Pediatric Inflammatory Bowel Disease III

UK

PIBD

Self

Past 2 weeks

10 ~ 15 min

35

0–4 Likert

5

Total, domain

0 ~ 100(worst-best)

For adults

 IBDQ-32

Guyatt G [22]

1989

The 32-item Inflammatory Bowel Disease Questionnaire

Canada

IBD

Self, rater

Past 2 weeks

NA

32

1–7 Likert

4

Total, domain

32 ~ 224(worst-best)

 SIBDQ*

Irvine EJ [23]

1996

The Short Inflammatory Bowel Disease Questionnaire

Canada

IBD

Self, rater, IVRS

Past 2 weeks

<10 min

10

1–7 Likert

4

Total, domain

10 ~ 70(worst-best)

 IBDQ-36

Love JR [24]

1992

The 36-item Inflammatory Bowel Disease Questionnaire

Canada

IBD

Self

Past 2 weeks

NA

36

1–7 Likert

5

Total, domain

1 ~ 7(worst-best)

 IBDQ-9*

Alcalá MJ [25]

2004

The 9-item Inflammatory Bowel Disease Questionnaire

Spain

IBD

Self, rater

Past 2 weeks

NA

9

1–7 Likert

1

Total

0 ~ 100(worst-best)

 RFIPC

Drossman DA [26]

1991

The Rating Form of IBD Patient Concerns

USA

IBD

Self

Today

NA

25

100-mm VAS

4

Total, domain

0 ~ 100(best-worst)

 CCQIBD

Farmer RG [27]

1992

The Cleveland Clinic Questionnaire for Inflammatory Bowel Disease

USA

IBD

Self

Past 2 months

15 ~ 20 min

47

1–5 Likert

4

Total

31 ~ 90(worst-best)

 PIBDQL

Martin A [28]

1995

The Padova Inflammatory Bowel Disease Quality of Life

Italy

IBD*

Self

NA

NA

29

0–3 Likert

4

Total, domain

0 ~ 87(best-worst)

 CGQL

Fazio VW [29]

1999

The Cleveland Global Quality of Life

USA

IBD*

Self, rater

Today

NA

3

0–10 VAS

3

Total, domain

0 ~ 1(worst-best)

 SHS

Hjortswang H [30]

2001

The Short Health Scale

Sweden

IBD

Self

NA

NA

4

100-mm VAS

4

domain

0 ~ 100(best-worst)

 EIBDQ

Smith GD [31]

2002

The Edinburgh Inflammatory Bowel Disease Questionnaire

UK

IBD

Self

Past 2 weeks

NA

13

0–1 or 0–3 Likert

3

Domain

NA(NA)

 CLIQ

Wilburn J [33]

2015

The Crohn’s Life Impact Questionnaire

UK

CD

NA

NA

NA

36

NA

2

Total, domain

NA(best-worst)

 CUCQ

Alrubaiy L [32]

2015

The Crohn’s and ulcerative colitis questionnaire

UK

IBD

Self

Past 2 weeks

<10 min

8

0–3 Likert

1

Total

NA(best-worst)

  1. CCQIBD Cleveland Clinic Questionnaire for Inflammatory Bowel Disease (named by the author), CD Crohn’s disease, IBD inflammatory bowel disease, IVRS administration of interactive voice response system, NA not available, PIBD paediatric inflammatory bowel disease, Rater rater-administered, Self self-administered, UC ulcerative colitis, VAS visual analogue scale
  2. IBD*: IBD patients after surgeries, including ileostomy, ileocolonic resection, proctocolectomy and ileoanal anastomosis, restorative proctocolectomy, ileal pouch anal anastomosis; Netherlands*: data from the Netherlands, Norway, Ireland, Portugal, Italy, Greece and Israel;
  3. The SIBDQ* and IBDQ-9* were short versions of the IBDQ-32 and IBDQ-36, respectively