Table 2 Four Major Themes and their Sub-Themes
From: Informal caregivers experience of supplemental oxygen in pulmonary fibrosis
Themes and Sub-themes | Illustrative Quotations |
|---|---|
Initial Reactions to O2 Making PF real Overwhelmed Worry and fear Gratitude | “It isn’t a cure, because there is no cure, but it [O 2 ] is the next best thing.” |
Effect of O2 on PLOs Adverse physical effects Beneficial physical effects Emotional effects Tethered | ”It’s maintaining her and, uh, for that I’m grateful. And I saw a lot of confidence when I gave her the portable oxygen machine initially. She was super-excited about it; you could tell that she felt good. She felt confident.” |
Life changes for ICs Impositions of O2 Emotional response Role change | “Well, no -- because, um, you know, any time you have, um, anything to change it so drastically in your life like that, you know, everything changes. You, you, um, you can’t, um, you know, you have to, you have to work, work everything in your life around the oxygen. You, you, can’t, um, you know, you can’t just up and go. You can’t just, uh, um, you know, do -- there’s certain things you can’t do. You know. It’s just, it’s changed life a lot, but definitely not for the better.” |
Adaptation and Acceptance Dealing with practical limitations Relationship changes Leaving home Tactics to achieve acceptance | “It didn’t take long for me to get to the point of, well, if it’s going to help you, let’s go for it, and let’s do whatever we need to do.” |