Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module

Table 3 Percentage of patients with improved HRQL by 1 standard error of measurement or more

PedsQL™ HRQL Score	1 week post discharge			Steady state 1–3 months post-discharge
Child self-report	N	SEM	Percentage with ≥1 SEM improvement	N	SEM	Percentage with ≥1 SEM improvement
Sickle cell disease module
Total Score	139	3.94	65.5	153	3.80	66.0
Pain and Hurt	137	7.43	62.8	152	7.88	55.9
Pain Impact	139	7.00	64.0	151	7.50	58.9
Pain Management and Control	137	10.09	50.4	151	10.72	51.0
Worry I	137	9.74	47.4	151	9.68	60.3
Worry II	120	14.55	33.3	130	13.59	24.6
Emotions	138	12.89	40.6	152	14.03	42.8
Treatment	137	9.61	35.0	151	9.99	42.4
Communication I	136	12.27	33.1	149	11.49	30.2
Communication II	133	13.51	46.6	144	13.11	50.0
Fatigue module
Total Score	134	5.72	54.5	144	5.49	54.2
General Fatigue	135	8.17	55.6	145	8.28	56.6
Sleep/Rest Fatigue	134	9.53	45.5	144	9.46	45.8
Cognitive Fatigue	132	8.20	47.0	142	8.04	45.1
Generic module
Total Score	132	5.09	59.1	141	5.13	57.4
Physical Summary	133	8.07	53.4	142	8.03	54.2
Psychosocial Summary	131	6.28	55.0	139	6.39	51.8
Emotional Functioning	131	9.96	55.7	140	9.59	55.0
Social Functioning	129	9.62	42.6	137	9.33	44.5
School Functioning	120	10.22	40.0	131	11.09	35.9

ISSN: 1477-7525