Table 2 Child self report health-related quality of life: effect sizes
ED Visit | 1 Week | 1–3 Months | ||||||
|---|---|---|---|---|---|---|---|---|
Domain | N | Mean (SD) | N | Mean | Effect Size | N | Mean | Effect Size |
Sickle cell disease module | ||||||||
Total Score | 166 | 48.3 (15.87) | 139 | 59.4 | 0.74 | 153 | 59.9 | 0.70 |
Pain and Hurt | 165 | 49.8 (18.89) | 137 | 66.6 | 0.91 | 152 | 62.7 | 0.66 |
Pain Impact | 165 | 33.3 (19.53) | 139 | 48.3 | 0.84 | 151 | 49.8 | 0.78 |
Pain Management and Control | 163 | 41.8 (28.24) | 137 | 54.3 | 0.45 | 151 | 52.3 | 0.37 |
Worry I | 165 | 48.7 (23.75) | 137 | 56.1 | 0.34 | 151 | 62.5 | 0.54 |
Worry II | 143 | 69.4 (28.17) | 120 | 74.8 | 0.23 | 130 | 75.2 | 0.19 |
Emotions | 164 | 47.5 (34.51) | 138 | 58.6 | 0.39 | 152 | 61.0 | 0.37 |
Treatment | 163 | 55.7 (20.54) | 137 | 60.6 | 0.27 | 151 | 61.0 | 0.27 |
Communication I | 162 | 70.9 (27.55) | 136 | 74.2 | 0.13 | 149 | 73.1 | 0.08 |
Communication II | 158 | 45.0 (28.96) | 133 | 56.3 | 0.42 | 144 | 59.1 | 0.52 |
Fatigue module | ||||||||
Total Score | 157 | 53.8 (18.53) | 134 | 61.0 | 0.41 | 144 | 62.1 | 0.47 |
General Fatigue | 158 | 52.0 (22.20) | 135 | 60.0 | 0.39 | 145 | 64.0 | 0.54 |
Sleep/Rest Fatigue | 157 | 48.6 (20.65) | 134 | 57.1 | 0.46 | 144 | 59.2 | 0.54 |
Cognitive Fatigue | 155 | 60.3 (26.29) | 132 | 65.2 | 0.20 | 142 | 63.2 | 0.13 |
Generic module | ||||||||
Total Score | 154 | 59.2 (18.08) | 132 | 67.2 | 0.49 | 141 | 67.7 | 0.47 |
Physical Summary | 155 | 55.7 (23.98) | 133 | 64.7 | 0.43 | 142 | 66.5 | 0.42 |
Psychosocial Summary | 153 | 61.4 (18.07) | 131 | 68.6 | 0.43 | 139 | 68.5 | 0.40 |
Emotional Functioning | 153 | 60.5 (23.84) | 131 | 70.2 | 0.43 | 140 | 71.4 | 0.45 |
Social Functioning | 151 | 72.2 (22.00) | 129 | 76.4 | 0.24 | 137 | 76.8 | 0.27 |
School Functioning | 147 | 51.4 (22.55) | 120 | 58.2 | 0.33 | 131 | 56.6 | 0.25 |