From: Developing a proxy version of the Adult social care outcome toolkit (ASCOT)
Item/attribute | Rationale for modification |
---|---|
Introduction | No modifications. |
Food and drink | No modifications. |
Accommodation comfort and cleanliness | Response option (some needs) changed from ‘Not quite clean or comfortable as s/he would like’ to ‘Not quite clean or comfortable enough’ to improve the proxy respondent’s comprehension and ability to distinguish between response options. |
Personal cleanliness and comfort | Item wording changed from ‘the person I am representing is…’ to ‘the person I am representing feels…’ for consistency with the ASCOT-SCT4 (standard). a |
Social participation and involvement | Response option (ideal state) changed from ‘As much social contact with people as s/he wants’ to ‘As much social contact as s/he wants with people s/he likes’ to improve acceptability and comprehension. Response option (no needs) changed from ‘Enough social contact with people. It’s OK’ to ‘Enough social contact with people’ to improve acceptability of the item. (The respondents felt that the ‘It’s OK’ was not needed and sounded too informal). |
Occupation | Item wording changed from ‘Which of the following statements best describes how the person you represent spends his/her time? This includes anything that s/he does in his/her day-to-day life’ to include at the end ‘that s/he values and enjoys’ to reflect the respondents’ preference for the inclusion of these words. b Response options (all) changed from referring to what the person ‘wants to do’ to what she ‘values and enjoys’. |
Control over daily life | No modifications. |
Personal safety | Item wording changed from ‘the person I am representing is…’ to ‘the person I am representing feels…’ for consistency with the ASCOT-SCT4 (standard). a Response option (no needs) changed from ‘Safe. It’s ok’ to ‘safe’. (The respondents felt that the ‘It’s OK’ was not needed and sounded too informal). Response option (ideal state, no needs) changed from ‘very safe’ and ‘safe’ to ‘as safe as s/he wants’ and ‘adequately safe but not as safe as s/he would like’ to improve comprehension, the proxy respondent’s understanding and ability to distinguish between response options. |
Dignity | Item format changed to bold and italicise ‘paid carers’. Item wording changed from ‘Because of the care s/he receives…’ to ‘Because of the paid care s/he receives…’ to improve comprehension that the question relates only to the effect of paid care. |