Table 2 Phrasing, response options, and source of questions used for patient experience and public expectations data

Activities

Would you feel able to do the things and activities that you want to do?

100: Completely

0: Not at all

SF-36^a

During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your PHYSICAL health?

Cut down the amount of time you spent on work or other activities.

1: None of the time

2: A little of the time

3: Some of the time

4: Most of the time

5: All of the time

(Same as above)…EMOTIONAL problems (such as feeling depressed or anxious)?

1: None of the time

2: A little of the time

3: Some of the time

4: Most of the time

5: All of the time

Relationships

Would you feel satisfied with your personal relationships

100: Completely

0: Not at all

ICECAP-A^b

Love, friendship, and support

1: I can have a lot of love, friendship, and support

2: I can have quite a lot of love, friendship, and support

3: I can only have a little love, friendship, and support

4: I cannot have any love, friendship, and support

Independence

Would you feel independent and in control of your life

100: Completely

0: Not at all

ICECAP-A

Being independent

1: I am able to be completely independent

2: I am able to be independent in many things

3: I am only able to be independent in a few things

4: I am unable to be at all independent

Burden

Would you be able to avoid being a burden on others

100: Completely

0: Not at all

AQoL-8D^c

How much of a burden do you feel you are to other people?

1: Not at all

2: A little

3: A moderate amount

4: A lot

5: Totally

Enjoyment

Would you feel you are able to enjoy life?

100: Completely

0: Completely unhappy

Integrated Household Survey^d

Overall, how happy did you feel yesterday?

11: Completely happy to

0: Not at all happy