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Table 2 Demographic characteristics of the cognitive interview participants

From: Development of the US English version of the phenylketonuria – quality of life (PKU-QOL) questionnaire

 

Participants*

Characteristics

Child

Adolescent

Adult

Parent

Age in years:

Range (mean)

9–11 (9.8)

12–17 (14.8)

19–36 (28.4)

31–56 (41)

Gender: males/females

2/3

4/1

2/3

2/3

Level of education

4th–6th grade

(two aged 9 in 4th grade; two aged 10 in 5th grade; one aged 11 in 6th grade)

6th–11th grade

(one aged 12 in 6th grade; one aged 14 and one aged 15 in 8th grade; one aged 16 in 9th grade, one aged 17 in 11th grade)

11th–12th grade

(highest obtained)

11th–12th grade

(highest obtained)

  1. *n = 5 for each population