Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

Table 2 Pearson-moment correlations between study variables from caregiver responses to the MD STARnet Caregiver Questionnaire (n = 191)¹

Variables	Stressor Pile-up	MSPSS	DUSOCS-F	DUSOCS-NF	PSS	FACIT-Sp	FQoL
Stressor Pile-up (aA)
Family Resources (bB)
Perceived Social Support (MSPSS)	−0.29^c
Supportive Relationships: Family (DUSOCS-F)	−0.30^c	0.53^c
Supportive Relationships: Non-Family (DUSOCS-NF)	−0.19^b	0.37^c	0.25^b
Perception and Coherence (cC)
Perceived Stress (PSS)	0.33^c	−0.44^c	−0.30^c	−0.32^c
Spirituality (FACIT-Sp)	−0.14	0.27^b	0.27^b	0.31^c	−0.56^c
Family Quality of Life (FQoL) (xX)	−0.29^b	0.58^c	0.52^c	0.25^b	−0.49^c	0.51^c
Mean	2.49	66.57	57.67	37.17	16.64	33.72	105.19
SD	1.45	14.09	23.72	24.31	6.44	9.12	13.52
Median	2.00	66.00	57.14	40.00	17.00	35.00	105.00
Min, max	0, 6	12, 84	0, 100	0, 100	1, 31	8, 48	61, 125

SD Standard deviation, Min minimum score, Max maximum score, MD STARnet Muscular Dystrophy Surveillance, Tracking and Research Network, MSPSS Multidimensional Scale of Perceived Social Support, DUSOCS-F Duke Social Stress and Support Scale – Family, DUSOCS-NF Duke Social Stress and Support Scale – non-Family, PSS Perceived Stress Support, FACIT-SP Functional Assessment of Chronic Illness Therapy 12-item Spiritual Well-Being Scale (modified), FQoL Beach Center Family Quality of Life Scale
^a p < 0.05. ^b p < 0.01. ^c p < 0.001
¹Questionnaires completed August 2011 through February 2012