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Table 1 Description and reliability of the HAQL proposed structures for adults and adolescents

From: Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults

HAQL dimensions N %
missing
Min Max Mean Sd Internal consistency
Cronbach’s α coefficient
Test-retest concordance
Intraclass correlation
Patient-proxy
concordance
Intraclass correlation
Overall scale 51 26% 309 800 620.86 135.29 0.95 0.91
Adults
1 - Laxative Diet 68 1% 17 100 85.50 24.09 0.78 0.66
2 - Presence of Diarrhea 59 14% 0 100 77.69 22.85 0.76 0.90
3 - Fecal Continence 58 16% 6 100 82.88 21.83 0.88 0.86
4 - Urinary Continence 69 0% 0 100 91.17 18.79 0.91 0.75
5 - Social Functioning 59 14% 0 100 78.20 30.42 0.89 0.86
6 - Emotional Functioning
and Body Image
69 0% 3 100 64.01 28.00 0.93 0.88
7 - Physical symptoms 59 14% 0 100 60.85 23.77 0.86 0.83
8 - Sexual functioning 61 12% 0 100 81.18 29.52 0.94 0.78
Adolescents
Overall scale 42 12% 276 700 608.07 95.50 0.94 0.91 0.94
1 - Laxative Diet 48 0% 33 100 88.83 18.01 0.65 0.88 0.73
2 - Presence of Diarrhea 43 10% 17 100 83.35 25.09 0.88 0.73 0.92
3 - Fecal Continence 43 10% 28 100 85.70 18.92 0.85 0.92 0.86
4 - Urinary Continence 48 0% 58 100 97.60 7.29 0.78 0.93 0.71
5 - Social Functioning 42 12% 0 100 93.14 19.92 0.95 0.88 0.81
6 - Emotional Functioning
and Body Image
48 0% 19 100 84.17 20.69 0.91 0.91 0.82
7 - Physical symptoms 43 10% 17 100 71.77 18.67 0.80 0.79 0.74