Validation of the French versions of the Hirschsprung’s disease and Anorectal malformations Quality of Life (HAQL) questionnaires for adolescents and adults

Table 1 Description and reliability of the HAQL proposed structures for adults and adolescents

HAQL dimensions	N	% missing	Min	Max	Mean	Sd	Internal consistency Cronbach’s α coefficient	Test-retest concordance Intraclass correlation	Patient-proxy concordance Intraclass correlation
Overall scale	51	26%	309	800	620.86	135.29	0.95	0.91	–
Adults
1 - Laxative Diet	68	1%	17	100	85.50	24.09	0.78	0.66	–
2 - Presence of Diarrhea	59	14%	0	100	77.69	22.85	0.76	0.90	–
3 - Fecal Continence	58	16%	6	100	82.88	21.83	0.88	0.86	–
4 - Urinary Continence	69	0%	0	100	91.17	18.79	0.91	0.75	–
5 - Social Functioning	59	14%	0	100	78.20	30.42	0.89	0.86	–
6 - Emotional Functioning and Body Image	69	0%	3	100	64.01	28.00	0.93	0.88	–
7 - Physical symptoms	59	14%	0	100	60.85	23.77	0.86	0.83	–
8 - Sexual functioning	61	12%	0	100	81.18	29.52	0.94	0.78	–
Adolescents
Overall scale	42	12%	276	700	608.07	95.50	0.94	0.91	0.94
1 - Laxative Diet	48	0%	33	100	88.83	18.01	0.65	0.88	0.73
2 - Presence of Diarrhea	43	10%	17	100	83.35	25.09	0.88	0.73	0.92
3 - Fecal Continence	43	10%	28	100	85.70	18.92	0.85	0.92	0.86
4 - Urinary Continence	48	0%	58	100	97.60	7.29	0.78	0.93	0.71
5 - Social Functioning	42	12%	0	100	93.14	19.92	0.95	0.88	0.81
6 - Emotional Functioning and Body Image	48	0%	19	100	84.17	20.69	0.91	0.91	0.82
7 - Physical symptoms	43	10%	17	100	71.77	18.67	0.80	0.79	0.74

ISSN: 1477-7525